KEYS

Definition

Keys includes Center ID, Subject ID, Mod1 and Mod2 ID, Follow-Up Period, and GUID.

Form

[X] Form 1
[X] Form 2

Source

Data Collector

Details

GUID

Please contact the NDSC for assistance with gaining FITBIR access to be able to create GUIDs.

Mod1ID and Mod2ID

‘Mod1ID’ and ‘Mod2ID’ are unique identifiers within their corresponding datasets.

‘Mod1ID’ uniquely identifies the rows in the Form 1 dataset. Form 1 data is collected upon intake and includes subject history and demographic variables. It has one row per subject.

‘Mod2ID’ uniquely identifies the rows in the Form 2 dataset, which contains follow-up data. Follow-up data is collected at certain years post-injury: 1, 2, 5, 10, 15, and every 5 years thereafter. There are multiple rows per subject in this dataset, so it also contains Mod1ID, which can then be used as a key to merge the two datasets.

For example, if a subject has follow-up data at Year 1, Year 2, and Year 5 timepoints, they will have one row in Form 1 and three rows in Form 2. A second subject may only have follow-up data at Year 1 and Year 2, so they will have one row in Form 1 and two rows in Form 2. Here is an illustration:

Form 1: Mod1ID
1
2

Form 2: Mod1ID Mod2ID
1   1
1  2
1 3
2 4
2 5

Characteristics

As of 4/1/02, the TBIMS data entry system has the capacity to present data entry screens that match more than one version of the Form I. Obtain the data entry screens that match the Form I you wish to enter by selecting the version number of your Form I from the drop down menu.

As of 4/1/04, all versions of Form I from V7.5 on are available as data entry screens. If the version of the Form I that you wish to edit or enter into the database is not listed on the drop-down menu, refer to external link.

Variables

Form Type

Variable

ID

Question

History

Form 1

Center

418

Center ID:

1989-10-01 - Variable Added

Form 1

Mod1Id

Id Number for Participant Record

Form 1

SubjectId

Subject ID:

1989-10-01 - Variable Added

Form 1

StaffInitials

Staff initials:

Form 1

GUID_consentF

507

Did participant consent to FITBIR GUID?

2015-01-01 - Variable Added

Form 1

GUID_realF

Real GUID:

2015-01-01 - Variable Added

Form 2

GUID_pseudoF

GUID_pseudo

Form 2

SubjectId

Subject ID:

1989-10-01 - Variable Added

Form 2

Center

606

Center ID:

1989-10-01 - Variable Added

Form 2

FollowUpPeriod

687

Followup period:

1989-10-01 - Variable Added

Form 2

StaffInitialsF

Staff initials

Form 2

GUID_consentF

4022

GUID_consent

Form 2

Mod2Id

Id Number for Follow-Up Evaluation

Form 2

GUID_realF

GUID_real

Codes and Values

ID 418

For Form: [Form 1]
For Variables: [Center]

Code

Description

2

The Virginia Commonwealth TBI Model System

3

The Institute for Rehabilitation and Research (TIRR Memorial Hermann)

4

Southeastern Michigan Traumatic Brain Injury System (SEMTBIS)

5

Northern California TBI Model System

6

The Ohio Regional TBI Model System

7

Moss TBI Model System

8

University of Alabama at Birmingham Traumatic Brain Injury Care System

9

Rocky Mountain Regional Brain Injury System

10

Georgia Model Brain Injury System (GAMBIS)

11

Spaulding/Partners Traumatic Brain Injury Model System at Harvard Medical School

12

Mayo Clinic Traumatic Brain Injury Model System

13

University of Missouri

14

TBI Model System of Mississippi

15

Northern New Jersey Traumatic Brain Injury System (NNJTBIS)

16

Carolinas Traumatic Brain Injury Rehabilitation and Research System

17

Oregon Health Sciences University

18

University of Washington Traumatic Brain Injury Model System

19

JFK-Johnson Rehabilitation Institute Traumatic Brain Injury Model System

20

University of Pittsburgh Medical Center Traumatic Brain Injury Model System (UPMC-TBI Model System)

21

North Texas Traumatic Brain Injury Model System

22

New York Traumatic Brain Injury Model System

23

Midwest Regional Traumatic Brain Injury Model System

28

Rusk Rehabilitation TBIMS at NYU

29

Indiana University / Rehabilitation Hospital of Indiana

30

South Florida TBI Model System

50

NDSC

ID 507

For Form: [Form 1]
For Variables: [GUID_consentF]

Code

Description

1

Consented

2

Deceased prior

3

Did Not Consent

77

Refused

ID NA: No codes found.
ID 4022

For Form: [Form 2]
For Variables: [GUID_consentF]

Code

Description

1

Consented

2

Deceased Prior

3

Did Not Consent

77

Refused

ID 606

For Form: [Form 2]
For Variables: [Center]

Code

Description

2

The Virginia Commonwealth TBI Model System

3

The Institute for Rehabilitation and Research (TIRR Memorial Hermann)

4

Southeastern Michigan Traumatic Brain Injury System (SEMTBIS)

5

Northern California TBI Model System

6

The Ohio Regional TBI Model System

7

Moss TBI Model System

8

University of Alabama at Birmingham Traumatic Brain Injury Care System

9

Rocky Mountain Regional Brain Injury System

10

Georgia Model Brain Injury System (GAMBIS)

11

Spaulding/Partners Traumatic Brain Injury Model System at Harvard Medical School

12

Mayo Clinic Traumatic Brain Injury Model System

13

University of Missouri

14

TBI Model System of Mississippi

15

Northern New Jersey Traumatic Brain Injury System (NNJTBIS)

16

Carolinas Traumatic Brain Injury Rehabilitation and Research System

17

Oregon Health Sciences University

18

University of Washington Traumatic Brain Injury Model System

19

JFK-Johnson Rehabilitation Institute Traumatic Brain Injury Model System

20

University of Pittsburgh Medical Center Traumatic Brain Injury Model System (UPMC-TBI Model System)

21

North Texas Traumatic Brain Injury Model System

22

New York Traumatic Brain Injury Model System

23

Midwest Regional Traumatic Brain Injury Model System

28

Rusk Rehabilitation TBIMS at NYU

29

Indiana University / Rehabilitation Hospital of Indiana

30

South Florida TBI Model System

50

NDSC

ID 687

For Form: [Form 2]
For Variables: [FollowUpPeriod]

Code

Description

1

Year 1

2

Year 2

5

Year 5

10

Year 10

15

Year 15

20

Year 20

25

Year 25

30

Year 30

35

Year 35

History

Date

Description

1995-01-01

Changed CODE : added 2 digits to number to identify year of annual follow-up evaluation.

2004-01-01

Changed CODE : corrected number of digits--changed from 11 to 9.

2010-04-01

Removed centers 13 - Missouri, and 17 - Oregon, corresponding with archival of data from non-participating centers