Form Type | Variable | ID | Question | History |
|---|---|---|---|---|
Form 1 | DeathCause1 | 438 | Primary cause of death ICD diagnosis code: | 1989-10-01 - Variable Added |
Form 1 | DeathCause2 | 438 | Secondary cause of death ICD diagnosis code: | 1989-10-01 - Variable Added |
Form 1 | DeathECode | 438 | External cause of death ICD code: | 1989-10-01 - Variable Added |
Form 2 | DeathCause1F | 618 | Cause of death ICD diagnosis code: primary: | 1989-10-01 - Variable Added |
Form 2 | DeathCause2F | 618 | Cause of death ICD diagnosis code: secondary: | 1989-10-01 - Variable Added |
Form 2 | DeathECodeF | 618 | External cause of death ICD code: | 1989-10-01 - Variable Added |
DEATH
DEATH CAUSE
Definition
Causes of Death - ICD CODES TO BE ASSIGNED BY NDSC STAFF ONLY
The first coded cause of death on the death certificate is the primary cause. Thereafter the secondary cause and/or external cause of death are coded if applicable. For more information, see: External Links
‘88888 - Not Applicable’ is used when person is alive or no other internal cause of death indicated, or death due to external causes .
Form
[X] Form 1
[X] Form 2
Source
Death Certificate - TO BE CODED BY NDSC STAFF ONLY
Details
Every attempt should be made by TBIMS center to obtain the death certificate. The death certificate is used by the NDSC (National Data and Statistical Center) as the primary source to code cause of death. If the death certificate cannot be obtained (e.g., the state health department of residence does not have a certificate on file for that person), the next best source should be used (e.g., listing of cause of death in hospital record where person died, family member report, etc.)
Submit Form I data to the NDSC on patients which expire any time after inpatient rehabilitation has begun and prior to definitive discharge from inpatient rehabilitation; even if the patient was transferred back to acute care from rehabilitation prior to expiring.
If expired, only the variables indicated on page 3 of SOP 105b (Guidelines for Collection of Follow-up Data) are to be completed.
If follow-up was started but not completed prior to the participant expiring, enter the partial data that was collected on the participant and then record the individual as expired for the next follow-up period.
If the causes of death are already coded on the death certificate, these codes are NOT to be used because they may not be accurate.
NDSC USE ONLY:
ICD Diagnosis Codes: For a list of ICD codes, see External Links - Online ICD Coding Manual
External cause of Injury ICD Codes: For an abbreviated list of Cause of Injury ICD codes, see External Links - ICD-9-CM E-Code Categories, ICD-10-CM List of External Cause of Morbidity Codes. See also, External Links - List of E-Codes.
Refer to SOP 206: ‘Procedure for Obtaining and Coding Cause of Death in the TBIMS National Database Guidelines for Coding Primary Cause of Death’.
Links
Guidelines for Coding Primary Cause of Death
ICD-9-CM E-Code Categories
ICD-10-CM List of External Cause of Morbidity Codes
Online ICD-9 Coding Manual
Procedures for Obtaining And Coding Cause of Death
Reference
UAB
ICD-9-CM 2001: International Classification of Diseases 9th Revision Clinical Modification, AMA Press. Volume 1, 2000, 251-279. ISBN: 1579471501.
Characteristics
ICD-9 code “079.82 - SARS-associated coronavirus” is assigned if primary cause of death on death certificate is listed as COVID-19.
ICD-9 code “480.3 - Pneumonia due to SARS-associated coronavirus” is assigned if COVID associated pneumonia is listed as a secondary cause or other “contributing condition” to cause of death.
Variables
Codes and Values
ID 438
For Form: [Form 1]
For Variables: [DeathCause1, DeathCause2, DeathECode]
Code | Description |
|---|---|
44444 | Person Expired But Cause Unknown |
88888 | Not Applicable ( Person alive or no other internal cause of death indicated, or death due to external causes ) |
99999 | Unknown if Person Expired |
ID 618
For Form: [Form 2]
For Variables: [DeathCause1F, DeathCause2F, DeathECodeF]
Code | Description |
|---|---|
44444 | Expired: Cause unknown |
88888 | Not Applicable: Person alive or death not due to external causes |
99999 | Unknown if person Expired |
History
Date | Description |
|---|---|
1994-02-01 | Added NOTE : clarifying the submission of patients which expire during inpatient rehabilitation. |
1995-01-01 | Changed CODE : description for 999.99 and 999.9 were updated. |
1995-01-01 | Added CODE : "777.77" and "777.7" |
2002-04-01 | Added NOTE : about instructions for E-codes. |
2004-04-01 | Added LINK : comprehensive list of E-Codes. |
2004-07-01 | Changed CODE : corrected the labels for 888.88 (ICD-9) and 888.8 (E-code). For 888.88, "NA-Person alive, or no other cause of death indicated" has been changed to "NA-Person alive, or no other internal cause of death indicated, or death due to external causes". For 888.8, "NA-Person alive, or no other cause of death indicated" has been changed to "NA-Person alive, or death not due to external causes". |
2004-07-01 | Changed CODE : added "777.7(7)=Person expired but cause of death unknown". Corrected the labels for 888.88 (ICD-9) and 888.8 (E-code). For 888.88, "NA-Person alive, or no other cause of death indicated" has been changed to "NA-Person alive, or no other internal cause of death indicated, or death due to external causes". For 888.8, "NA-Person alive, or no other cause of death indicated" has been changed to "NA-Person alive, or death not due to external causes". |
2006-01-01 | Added NOTE : to not use codes on death certificate. |
2006-04-01 | Changed NOTE : added "ICD-9 codes that are preceded by "E" or "V" are entered into DeathECode, never into DeathCause1 or 2". |
2006-04-01 | Changed CODE : "NA" code for E-codes from 888.8 to 88888. |
2006-04-01 | Changed CODE : "Expired cause unk" code for E-code from 777.7 to 77777. |
2006-04-01 | Changed CODE : "Unk if expired" code for E-code from 999.9 to 99999. |
2008-10-01 | Changed CODE : primary and secondary cause of death; Cause Unknown = 77777, Not Applicable = 88888, Unknown = 99999. |
2009-04-01 | Changed NOTES : emphasis placed upon obtaining death certificates. |
2009-10-01 | Added NOTE : If expired, complete only the variables listed on p3 of SOP 105b. |
2010-10-01 | Added LINK: Online ICD-9 Coding Manual. |
2011-04-01 | Added NOTE : Upon analysis if a person has an E-Code, it will be treated as the primary cause of death. Updated EXTERNAL LINK : Guidelines for Coding Primary Cause of Death (Removed verbiage under item F stating that if an E-Code is present, it should be listed first). |
2018-01-15 | Changed NOTE : from "If follow-up was started but not completed prior to the participant expiring, complete the Form II appropriately for an expired participant." to "If follow-up was started but not completed prior to the participant expiring, enter the partial data that was collected on the participant and then record the individual as expired for the next follow-up period." |
2021-04-01 | ICD-9 code "079.82 - SARS-associated coronavirus" is assigned if primary cause of death on death certificate is listed as COVID-19. |
DEATH CERTIFICATE
Definition
Deathcertstat - Status of collection of death certificates
Deathstate - State in which the death occurred
DeathcertstatF - Status of collection of death certificates
DeathstateF - State in which the death occurred
Variables
Form Type | Variable | ID | Question | History |
|---|---|---|---|---|
Form 1 | Deathcertstat | 9867 | Status of collection of death certificate | 2025-07-01 - Variable ADDED |
Form 1 | Deathstate | 19563 | State in which the death occurred | 2025-07-01 - Variable ADDED |
Form 2 | DeathcertstatF | 19561 | Status of collection of death certificate | 2025-07-01 - Variable ADDED |
Form 2 | DeathstateF | 774 | State in which the death occurred | 2025-07-01 - Variable ADDED |
Codes and Values
ID 19563
For Form: [Form 1]
For Variables: [Deathstate]
Code | Description |
|---|---|
AK | Alaska |
AL | Alabama |
AR | Arkansas |
AZ | Arizona |
CA | California |
CO | Colorado |
CT | Connecticut |
DC | District of Columbia |
DE | Delaware |
FL | Florida |
GA | Georgia |
HI | Hawaii |
IA | Iowa |
ID | Idaho |
IL | Illinois |
IN | Indiana |
KS | Kansas |
KY | Kentucky |
LA | Louisiana |
MA | Massachusetts |
MD | Maryland |
ME | Maine |
MI | Michigan |
MN | Minnesota |
MO | Missouri |
MS | Mississippi |
MT | Montana |
NC | North Carolina |
ND | North Dakota |
NE | Nebraska |
NH | New Hampshire |
NJ | New Jersey |
NM | New Mexico |
NV | Nevada |
NY | New York |
OH | Ohio |
OK | Oklahoma |
OR | Oregon |
PA | Pennsylvania |
RI | Rhode Island |
SC | South Carolina |
SD | South Dakota |
TN | Tennessee |
TX | Texas |
UT | Utah |
VA | Virginia |
VT | Vermont |
WA | Washington |
WI | Wisconsin |
WV | West Virginia |
WY | Wyoming |
666 | Variable Did Not Exist |
888 | Not Applicable |
999 | Unknown |
ID 9867
For Form: [Form 1]
For Variables: [Deathcertstat]
Code | Description |
|---|---|
1 | Received |
2 | Pending |
3 | Unable to obtain |
66 | Variable Did Not Exist |
88 | Not Applicable |
ID 19561
For Form: [Form 2]
For Variables: [DeathcertstatF]
Code | Description |
|---|---|
1 | Received |
2 | Pending |
3 | Unable to Obtain |
66 | Variable Did Not Exist |
88 | Not Applicable |
ID 774
For Form: [Form 2]
For Variables: [DeathstateF]
Code | Description |
|---|---|
AK | Alaska |
AL | Alabama |
AR | Arkansas |
AZ | Arizona |
CA | California |
CO | Colorado |
CT | Connecticut |
DC | District of Columbia |
DE | Delaware |
FL | Florida |
GA | Georgia |
HI | Hawaii |
IA | Iowa |
ID | Idaho |
IL | Illinois |
IN | Indiana |
KS | Kansas |
KY | Kentucky |
LA | Louisiana |
MA | Massachusetts |
MD | Maryland |
ME | Maine |
MI | Michigan |
MN | Minnesota |
MO | Missouri |
MS | Mississippi |
MT | Montana |
NC | North Carolina |
ND | North Dakota |
NE | Nebraska |
NH | New Hampshire |
NJ | New Jersey |
NM | New Mexico |
NV | Nevada |
NY | New York |
OH | Ohio |
OK | Oklahoma |
OR | Oregon |
PA | Pennsylvania |
RI | Rhode Island |
SC | South Carolina |
SD | South Dakota |
TN | Tennessee |
TX | Texas |
UT | Utah |
VA | Virginia |
VT | Vermont |
WA | Washington |
WI | Wisconsin |
WV | West Virginia |
WY | Wyoming |
666 | Variable Did Not Exist |
888 | Not Applicable |
999 | Unknown |
History
No history found for the Domain.
DEATH DATE
Definition
Date of Death collected by abstraction or found on death certificate
Form
[X] Form 1
[X] Form 2
Source
Form 1 - Abstraction (acute or rehab record)
Form 2 - Death Certificate, Proxy, Obituary, Medical Record
Details
Date of Death may be obtained from family if a death certificate is not available.
Variables
Form Type | Variable | ID | Question | History |
|---|---|---|---|---|
Form 1 | Death | 437 | Date of death: | 1989-10-01 - Variable Added |
Form 2 | DeathF | 619 | Date of death: | 1989-10-01 - Variable Added |
Codes and Values
ID 437
For Form: [Form 1]
For Variables: [Death]
Code | Description |
|---|---|
08/08/8888 | Not Applicable |
09/09/9999 | Unknown |
ID 619
For Form: [Form 2]
For Variables: [DeathF]
Code | Description |
|---|---|
04/04/4444 | Expired: Date unknown |
08/08/8888 | Not Applicable: Person Alive |
09/09/9999 | Unknown |
History
Date | Description |
|---|---|
1995-01-01 | Added CODE : date of death code 07/07/7777 = person expired but unknown date. |
DEATH - CALCULATED
Definition
The year portion of the date of death. E.g., “2005” if the date of death is 2/14/2005.
Variables
Form Type | Variable | ID | Question | History |
|---|---|---|---|---|
Form 1 | DEATHYEAR | Year of death | ||
Form 2 | DAYStoDEATHF | 3650 | Days from Birth to Death | 2013-04-24 - Variable Added |
Codes and Values
ID NA: No codes found.
ID 3650
For Form: [Form 2]
For Variables: [DAYStoDEATHF]
Code | Description |
|---|---|
999999 | Unknown |
History
No history found for the Domain.