Form Type | Variable | ID | Question | History |
|---|---|---|---|---|
Form 1 | ZipDis | 568 | Zip code after rehab discharge: | 2001-01-01 - Variable Added |
Form 1 | ZipInj | 569 | What was the zip code at the place where you were living before the injury? | 2001-01-01 - Variable Added |
Form 2 | AddressConsentF | 570 | Authorization received for collection of street address: | 2010-04-01 - Variable Added |
Form 2 | Street1F | Street address: | 2010-04-01 - Variable Added | |
Form 2 | CityF | City: | 2010-04-01 - Variable Added | |
Form 2 | StateF | 774 | State: | 2010-04-01 - Variable Added |
Form 2 | ZipF | 794 | What is your zip code: | 2001-01-01 - Variable Added |
DEMOGRAPHICS
ADDRESS
Definition
PURPOSE: To allow an estimate of the extent and type of health care services available in the participant’s vicinity to evaluate how community impacts outcomes.
Geographic identifiers of address and years at address, including the following variables:
- Authorization received for collection of street address
- Street address 1
- City
- State
The National Data and Statistical Center will obtain Geo-ID codes on a quarterly basis utilizing addresses provided.
Zip Code of location where person with brain injury is living: - at the time just prior to index TBI (ZipInj) - at discharge from Rehabilitation (ZipDis) - at time of follow-up evaluation (ZipF)
Calculated variable converting various intervals to a standardized format is available.
Form
[X] Form 1
[X] Form 2
Source
Form 1 ZipInj - Pre-Injury History (participant or proxy) Form 1 ZipDis - Abstraction (rehab record) Form 2 ZipF - Interview, Mail-out (participant or proxy) Form 2 AddressConsentF, CityF, StateF, and Street1F - Interview, Mail-out (participant or proxy)
Details
AddressConsentF - Participants should be given the option of opting out of this component of data collection
- Leave address fields blank if not applicable or unknown.
If participant is living in a boat, RV or other living situation where they “take their home with them”, record the address they use as their permanent address.
If participant is living in a boat, RV or other living situation where they “take their home with them” and travel frequently (vs. boat being ‘permanently’ docked, or RV being stationary) then skip the GEO-ID question and code zip code as ‘88888- Not Applicable’, as this item is used to look at services available in participant’s area.
ZipDis- Record zip code of first place the person goes after discharge, regardless of how long he/she resided there.
If the person has no residence, record the zip code of the area in which he/she is most likely to be (for example, the homeless shelter they use).
Variables
Codes and Values
ID 568
For Form: [Form 1]
For Variables: [ZipDis]
Code | Description |
|---|---|
66666 | Variable Did Not Exist ( Cases admitted to System before 1/1/01 ) |
88888 | Not Applicable: Expired in Rehab; Outside US |
99999 | Unknown |
ID 569
For Form: [Form 1]
For Variables: [ZipInj]
Code | Description |
|---|---|
66666 | Variable Did Not Exist ( Cases admitted to System before 1/1/01 ) |
88888 | Not Applicable: Expired in Rehab; Outside US |
99999 | Unknown |
ID 570
For Form: [Form 2]
For Variables: [AddressConsentF]
Code | Description |
|---|---|
0 | No |
1 | Yes |
66 | Variable Did Not Exist |
ID 774
For Form: [Form 2]
For Variables: [StateF]
Code | Description |
|---|---|
AK | Alaska |
AL | Alabama |
AR | Arkansas |
AZ | Arizona |
CA | California |
CO | Colorado |
CT | Connecticut |
DC | District of Columbia |
DE | Delaware |
FL | Florida |
GA | Georgia |
HI | Hawaii |
IA | Iowa |
ID | Idaho |
IL | Illinois |
IN | Indiana |
KS | Kansas |
KY | Kentucky |
LA | Louisiana |
MA | Massachusetts |
MD | Maryland |
ME | Maine |
MI | Michigan |
MN | Minnesota |
MO | Missouri |
MS | Mississippi |
MT | Montana |
NC | North Carolina |
ND | North Dakota |
NE | Nebraska |
NH | New Hampshire |
NJ | New Jersey |
NM | New Mexico |
NV | Nevada |
NY | New York |
OH | Ohio |
OK | Oklahoma |
OR | Oregon |
PA | Pennsylvania |
RI | Rhode Island |
SC | South Carolina |
SD | South Dakota |
TN | Tennessee |
TX | Texas |
UT | Utah |
VA | Virginia |
VT | Vermont |
WA | Washington |
WI | Wisconsin |
WV | West Virginia |
WY | Wyoming |
666 | Variable Did Not Exist |
888 | Not Applicable |
999 | Unknown |
ID 794
For Form: [Form 2]
For Variables: [ZipF]
Code | Description |
|---|---|
66666 | Variable Did Not Exist ( Follow-up evaluation before 7/1/01 ) |
88888 | Not Applicable: Person lives outside of the US |
99999 | Unknown |
ID NA: No codes found.
History
Date | Description |
|---|---|
2001-01-01 | Zip Code added as part of Residence. |
2001-07-01 | Zip Code becomes a separate variable. |
2001-08-20 | Added NOTE : purpose added. |
2001-08-20 | Added NOTE : about estimating zip code if homeless. |
2001-08-20 | Added NOTE : about first place resides after discharge. |
2002-01-01 | Added CODE to Form 2 : "0=Variable did not exist". |
2002-07-01 | Changed CODE : Missing data codes are now 5 characters rather than 1 |
2002-07-01 | Changed CODE : Added patient lived outside US to code “Not Applicable”. |
2011-01-25 | Added NOTE : how to code zip if participant is homeless at follow-up. |
2011-11-08 | Added NOTE : to not include time spent in prison towards length of time at address. |
2012-01-12 | Added NOTE : as a general rule, if a person is living in a sub-acute facility or nursing home and then returns to home, if a person is there for less than 6 months, then use their home address. If more than 6 months, use the program/facility address. |
2022-07-01 | Added NOTE: If participant is living in a boat, RV or other living situation where they "take their home with them", record the address they use as their permanent address. |
BIRTHDATE
Definition
Date of birth of the patient. Only patients 16 years old or older at the time of injury are to be entered into the database.
Form
[X] Form 1
[ ] Form 2
Source
Pre-Injury History (participant or proxy)
Details
If exact date of birth is unknown, then estimate. If month is known but day cannot be estimated, enter the mid-point of the month.
Variables
Form Type | Variable | ID | Question | History |
|---|---|---|---|---|
Form 1 | Birth | 408 | What is your date of birth? | 1989-10-01 - Variable Added |
Codes and Values
ID 408
For Form: [Form 1]
For Variables: [Birth]
Code | Description |
|---|---|
09/09/9999 | Unknown |
History
Date | Description |
|---|---|
1999-04-02 | Changed CODES : revised unknown codes to be compatible with new software. |
2003-04-01 | Removed CODE : "08/08/8888=N/A" |
2006-01-01 | Added NOTE : to estimate day of birth, if unknown. |
CULTURAL
Definition
Primary Language spoken in the participant’s home
To code this variable, participants will be asked;
“Before the injury, what was the primary language spoken in your home?” (Form 1)
“What is the primary language spoken in your home?” (Form 2)
Languages other than English or Spanish will be recorded in a secondary text field.
Country of birth; To code this variable, participants will be asked “What is your country of birth?” Countries other than the United States will be recorded in a secondary text field.
Years in US; The number of years that a participant has lived in the United States (if they were not born in the US). To code this variable, participants who report a country of birth other than the United States will be asked “How many years have you been in the United States?”
Form
[X] Form 1
[X] Form 2
Source
Form I - Pre-Injury History (participant or proxy)
Form 2 - Interview, Mail-Out (participant or proxy)
Details
For participants enrolled prior to addition of this variable, ask the question at the time of the next Form 2 follow-up.
Primary Language
If 2 or more languages are spoken in the home, try to get the participant to choose which language they consider to be the primary language.
Country of Birth
Country of Birth for participants enrolled prior to addition of this variable; ask the question at the time of the next Form 2 follow-up.
If born in Puerto Rico count as born in the US.
Years in US
This question should only be asked of participants whose country of birth is other than the United States. Therefore, it should be asked after the question on country of birth.
Begin by asking the number of years participants have been in the United States. If less than 1 year, then ask number of months. Code 6 months or greater as 1 year. Code less than 6 months as 0 years.
If participants have lived in the United States intermittently, with periods separated by time spent in another country, record the total number of years spent in the United States. Example - Participant has spent 3-4 months of every year in the US for the last 30 years. To determine the total number of years spent in the US, multiply the 30 years by 3.5 months (mid-point of a “3 - 4” month range). That gives us a total of 105 months in the US. Divide that by 12 months for a total of 8.75 years, and then round up for a total of 9 years spent in the US.
Characteristics
Recommendations for using data collected at Form 2 include two options:
- Only use a given response at the time it was collected when analyzing data from that year. This would limit sample size but would be the most accurate use of the variable reflecting the participant’s self-report of length of time in the U.S. at that moment.
- Use the variable to derive a value representing a common time point across all individuals who immigrated to the U.S. Any calculated variables derived from this would have to be understood as an estimate and reported as such in publications. For example:
- Estimated Age of Entry Into the U.S.
i. Subtracting current age at the time of the response from the reported length of time in the U.S. would be an estimate of age of entry into the U.S. with the understanding that this represents an upper estimate.
ii. True age of entry may be younger for individuals who have lived for one or more years outside of the U.S. after their initial immigration.
- Estimated Years in the U.S. at the Time of Injury.
i. For those who were asked this question at a follow-up time point, subtracting the years since injury at the time this was asked from the response provided would estimate time in the U.S. at the time of injury.
ii. This can result in a negative number as in this example:
- Estimated Age of Entry Into the U.S.
Someone from abroad visiting U.S. relatives has a TBI. After rehabilitation, they return to their home country. They then immigrate to live in the U.S. for 3 years. At their year 5 follow-up, they state they have been living in the U.S. for 3 years. Subtracting 5 from this value results in -2 years in the U.S. at the time of injury.
In this case, the value can be counted as 0 years in the U.S. at the time of injury.
Variables
Form Type | Variable | ID | Question | History |
|---|---|---|---|---|
Form 1 | LngSpkHmF | 519 | What is the primary language spoken in your home? | 2012-10-01 - Variable Added |
Form 1 | LngSpkHmOthF | Language spoken (if not English or Spanish): | 2012-10-01 - Variable Added | |
Form 1 | CountryBirthF | 420 | What is your country of birth? | 2012-10-01 - Variable Added |
Form 1 | CountryBirthOthF | Country of birth (if not born in the US): | 2012-10-01 - Variable Added | |
Form 1 | YearsinUSF | 566 | How many years have you been in the United States (if not born in the US)? | 2012-10-01 - Variable Added |
Form 1 | YearsinUSFUPF | 567 | Followup period when years spent in the US was asked: | 2012-10-01 - Variable Added |
Form 2 | LngSpkHmF | 723 | What is the primary language spoken in your home? | 2012-10-01 - Variable Added |
Form 2 | LngSpkHmOthF | Language spoken (if not English or Spanish): | 2012-10-01 - Variable Added | |
Form 2 | CountryBirthF | 616 | What is your country of birth? | 2012-10-01 - Variable Added |
Form 2 | CountryBirthOthF | Country of birth (if not born in the US): | 2012-10-01 - Variable Added | |
Form 2 | YearsInUSF | 792 | How many years have you been in the United States? | 2012-10-01 - Variable Added |
Form 2 | YearsinUSFUPF | 7842 | Followup period when years spent in the US was asked: | 2012-10-01 - Variable Added |
Codes and Values
ID 420
For Form: [Form 1]
For Variables: [CountryBirthF]
Code | Description |
|---|---|
1 | United States |
2 | Other Than United States |
77 | Refused |
99 | Unknown |
ID 519
For Form: [Form 1]
For Variables: [LngSpkHmF]
Code | Description |
|---|---|
1 | English |
2 | Spanish |
3 | Other Language |
77 | Refused |
99 | Unknown |
ID 566
For Form: [Form 1]
For Variables: [YearsinUSF]
Code | Description |
|---|---|
777 | Refused |
888 | Not Applicable: Born in US |
999 | Unknown |
ID 567
For Form: [Form 1]
For Variables: [YearsinUSFUPF]
Code | Description |
|---|---|
888 | Not Applicable: Born in US |
999 | Unknown |
ID NA: No codes found.
ID 616
For Form: [Form 2]
For Variables: [CountryBirthF]
Code | Description |
|---|---|
1 | United States |
2 | Other Than the United States |
77 | Refused |
99 | Unknown |
ID 723
For Form: [Form 2]
For Variables: [LngSpkHmF]
Code | Description |
|---|---|
1 | English |
2 | Spanish |
3 | Other Language |
77 | Refused |
99 | Unknown |
ID 7842
For Form: [Form 2]
For Variables: [YearsinUSFUPF]
Code | Description |
|---|---|
888 | Not Applicable: Born in US |
999 | Unknown |
ID 792
For Form: [Form 2]
For Variables: [YearsInUSF]
Code | Description |
|---|---|
777 | Refused |
888 | Not Applicable: Born in US |
999 | Unknown |
History
Date | Description |
|---|---|
2012-10-01 | Added to Database |
2013-10-09 | Added NOTE : If participants have lived in the United States intermittently, how to calculate. |
2016-01-01 | Added NOTE : if born in Puerto Rico count as born in the US. |
2021-10-26 | Added CHARACTERISTICS : "Recommendations for using data collected at Form 2 include 2 options: ..." |
HOUSEHOLD
Definition
Primary person with whom the person with TBI is living with at time of evaluation, according to the best source of information (person with brain injury unless unavailable or unreliable).
LivWhoInj - at time just prior to injury
LivWhoDis - at discharge from Rehabilitation
LivWhoF - Person Living with Currently: Primary
Form
[X] Form 1
[X] Form 2
Source
Form 1 LiveWhoInj - Pre-Injury History (participant or proxy)
Form 1 LivWhoDis - Abstraction (rehab record)
Form 2 LivWhoF - Interview, Mail-Out (participant or proxy)
Details
If living with more than one person, list the person most involved in the patient’s life and care.
Characteristics
On 4/1/2022, the response categories were collapsed from the following coding choices;
1 - Alone; 2 - Spouse; 3 - Parent(s); 4 - Sibling(s); 5 - Child/Children Under 21 Years Of Age; 6 - Other Relative(s) Or Adult Child/Children 21 Years Of Age Or Older; 7 - Roommate(s) Or Friend(s); 8 - Significant Other; 9 - Other Patients; 10 - Other Residents (Group Living Situation); 11 - Personal Care Attendant; 77 - Other (Includes Correctional Facility Inmates); 99 - Unknown
…to the choices below;
1. Alone, 2. With spouse or significant other, 3. Other family, 4. Someone else, 99. Unknown (LivWhoDis has an additional code of 88-Not Applicable: Expired in Rehab.)
Existing cases were recoded as follows;
- Cases coded as ‘4 - Sibling(s)’, ‘5 - Child/Children Under 21 Years Of Age’, or ‘6 - Other Relative(s) Or Adult Child/Children 21 Years Of Age Or Older’ were recoded to ‘3 - Other Family’.
- Cases coded as ‘7 - Roommate(s) Or Friend(s)’, ‘9 - Other Patients’, ‘10 - Other Residents (Group Living Situation)’, ‘11 - Personal Care Attendant’, ‘77 - Other (Includes Correctional Facility Inmates)’, were recoded to ‘4. Someone else’.
- Cases coded as ‘8 - Significant Other’ were recoded to ‘2 Spouse’.
Variables
Form Type | Variable | ID | Question | History |
|---|---|---|---|---|
Form 1 | LivWhoDis | 7834 | Primary person living with after rehab discharge: | 1989-10-01 - Variable Added |
Form 1 | LivWhoInj | 518 | Before the injury, who was the primary person living with you? | 1989-10-01 - Variable Added |
Form 2 | LivWhoF | 7804 | Who are you currently living with? | 1989-10-01 - Variable Added |
Codes and Values
ID 518
For Form: [Form 1]
For Variables: [LivWhoInj]
Code | Description |
|---|---|
1 | Alone |
2 | Spouse or Significant Other |
3 | Other Family |
4 | Someone Else |
99 | Unknown |
ID 7834
For Form: [Form 1]
For Variables: [LivWhoDis]
Code | Description |
|---|---|
1 | Alone |
2 | With spouse or significant other |
3 | Other family |
4 | Someone else |
88 | NA: Expired in Rehab |
99 | Unknown |
ID 7804
For Form: [Form 2]
For Variables: [LivWhoF]
Code | Description |
|---|---|
1 | Alone |
2 | Spouse or significant other |
3 | Other family |
4 | Someone else |
99 | Unknown |
History
Date | Description |
|---|---|
1994-02-01 | Deleted NOTE : reference to Level I data collection. |
1994-08-19 | Deleted NOTE : regarding collecting data from subject and SO. |
1994-08-19 | Added CODE : "88-Not Applicable: Expired in rehab" |
1994-08-19 | Added NOTE : about selecting the person to record, if subject is living with more than one person. |
1994-09-13 | Deleted NOTE : living with at time of acute discharge. |
1995-07-01 | Removed VARIABLE : 2nd and 3rd persons living with, revised code 88 to correspond. |
1995-07-01 | Removed CODE Form 2 : "88-Not Applicable: Expired in rehab" |
2004-07-01 | Added NOTE : to obtain from the “Best Source of Information”. |
2006-01-01 | Added NOTE : If lives in a boarding house, use code "10 - Other Residents". |
2008-04-01 | Changed CODE : "77 - Other (Includes correctional facility inmates)" to "77 - Other". |
2022-04-01 | Changed CODES : Code choices reduced to 1. Alone, 2. With spouse or significant other, 3. Other family, 4. Someone else, 99. Unknown. Form 1 LivWhoDis has and additional code - 88. NA Died in Rehab. (Form 1 LiveWhoInj and LiveWhoDis codes were updated on 7/1/2022). |
MARITAL
Definition
Form 1 - Marital status at time just prior to injury.
Form 2 - Marital status at follow-up evaluation according to the best source of information (person with brain injury unless unavailable or unreliable).
1 - Single (Never Married) A person who has never married
2 - Married A person who is married, whether legally or by common law
3 - Divorced A person who is legally divorced
4 - Separated Includes both legal separation and living apart from a married partner
Form
[X] Form 1
[X] Form 2
Source
Form 1 Mar - Pre-Injury History (participant or proxy)
Form 2 MarF - Interview, Mail-Out (participant or proxy)
Details
If separated but living together for more than 7 years, code as “2. Married”.
Reference
UAB
Variables
Form Type | Variable | ID | Question | History |
|---|---|---|---|---|
Form 1 | Mar | 525 | What is your marital status? | 1989-10-01 - Variable Added |
Form 2 | MarF | 726 | What is your current marital status? | 1989-10-01 - Variable Added |
Codes and Values
ID 525
For Form: [Form 1]
For Variables: [Mar]
Code | Description |
|---|---|
1 | Single (Never Married) ( A person who has never married ) |
2 | Married ( A person who is married, whether legally or by common law ) |
3 | Divorced ( A person who is legally divorced ) |
4 | Separated ( Includes both legal separation and living apart from a married partner ) |
5 | Widowed |
7 | Other |
99 | Unknown |
ID 726
For Form: [Form 2]
For Variables: [MarF]
Code | Description |
|---|---|
1 | Single (Never Married) ( A person who has never married ) |
2 | Married ( A person who is married, whether legally or by common law ) |
3 | Divorced ( A person who is legally divorced ) |
4 | Separated ( Includes both legal separation and living apart from a married partner ) |
5 | Widowed |
7 | Other |
99 | Unknown |
History
Date | Description |
|---|---|
1994-08-19 | Delete NOTE : regarding collecting data from subject and SO. |
1994-08-19 | Changed CODES Form 2 : corrected descriptions to be consistent with Form 1. |
1994-09-13 | Deleted CODE : "6=cohabitation". |
2001-08-20 | Added NOTE : obtain from the “Best Source of Information”. |
2003-10-01 | Added NOTE : that if married more than once, code relative to the most recent. |
2007-04-01 | Changed CODE : added "A person who is married, whether legally or by common law" to description of Married |
2011-04-01 | Added CODE Form 2 (MarChange) : "1 - Separation" |
MILITARY
Definition
Determine history of military service. These variables are intended to allow for better comparison with DOD/VA data.
The following questions are asked:
- Have you ever served in the military?
- If yes, how many years of active duty did you serve?
- If yes, were you ever deployed in a combat zone?
Form
[X] Form 1
[X] Form 2
Source
Form 1 - Pre-Injury History (participant or proxy)
Form 2 - Interview, Mail-out (participant or proxy)
Details
Guard or reserve duty should be considered as service in the military, but does not count toward years of active duty.
Include service in foreign military.
Round up if months of duty are given (e.g., month of active duty = .5 years; 14 months of active duty = 1.5 years)
Reference
DVBIC SIG
Variables
Form Type | Variable | ID | Question | History |
|---|---|---|---|---|
Form 1 | MILServeF | 527 | Have you ever served in the military? | 2010-04-01 - Variable Added |
Form 1 | MILYearsF | 528 | How many years of active duty have you served in the military? | 2010-04-01 - Variable Added |
Form 1 | MILCombatF | 526 | Were you ever deployed in a combat zone? | 2010-04-01 - Variable Added |
Form 2 | MILServeF | 4023 | Have you ever served in the military? | |
Form 2 | MILYearsF | 4024 | How many years of active duty did you serve? | |
Form 2 | MILCombatF | 4025 | Were you ever deployed in a combat zone? |
Codes and Values
ID 526
For Form: [Form 1]
For Variables: [MILCombatF]
Code | Description |
|---|---|
0 | No |
1 | Yes |
66 | Variable Did Not Exist |
77 | Refused |
88 | Not Applicable: Never served in military |
99 | Unknown |
ID 527
For Form: [Form 1]
For Variables: [MILServeF]
Code | Description |
|---|---|
0 | No |
1 | Yes |
66 | Variable Did Not Exist |
77 | Refused |
99 | Unknown |
ID 528
For Form: [Form 1]
For Variables: [MILYearsF]
Code | Description |
|---|---|
666.0 | Variable Did Not Exist |
777.0 | Refused |
888.0 | Not Applicable: Never served in military |
999.0 | Unknown |
ID 4023
For Form: [Form 2]
For Variables: [MILServeF]
Code | Description |
|---|---|
0 | No |
1 | Yes |
66 | Variable Did Not Exist |
77 | Refused |
99 | Unknown |
ID 4024
For Form: [Form 2]
For Variables: [MILYearsF]
Code | Description |
|---|---|
666 | Variable Did Not Exist |
777 | Refused |
888 | Not applicable |
999 | Unknown |
ID 4025
For Form: [Form 2]
For Variables: [MILCombatF]
Code | Description |
|---|---|
0 | No |
1 | Yes |
66 | Variable Did Not Exist |
77 | Refused |
88 | Not applicable |
99 | Unknown |
History
No history found for the Domain.
PHYSICAL MEASUREMENTS
Definition
Height
Form 1 - Height at baseline (in inches) as documented in either the acute hospital medical record or rehabilitation record.
Form 2 - “How tall are you without shoes?”
Weight
Form 1 - Weight (in pounds) at acute hospitalization as documented in the acute hospital medical record.
Form 2 - “How much do you weigh without shoes?”
Form
[X] Form 1
[X] Form 2
Source
Form 1 Height - Abstraction (acute or rehab record) Form 2 HeightF - Interview, Mail-out (participant or proxy) Form 1 Weight - Abstraction (acute record) Form 2 WeightF - Interview, Mail-Out (participant or proxy)
Details
Height at baseline can be collected from either the acute hospital medical record or rehabilitation record.
Weight should reflect the first measurement taken during acute hospitalization using a scale or bed scale. If unable to determine if recorded weights were measured using a scale or bed scale, use the first recorded weight in the acute hospital medical record. EMS or paramedic reports should not be used to collect weight.
Round up if half inches or pounds are reported.
If the participant notes any arm or leg amputation(s) when asked about height and weight, code 888 - Not Applicable (Any Arm Or Leg Amputation). The Data Collector does NOT need to probe for amputations when asking the height and weight questions.
If there is a height discrepancy between Form 1 and any height reported during follow-up, height should be verified at the next follow-up, and the discrepancy should be corrected on the Form 1 or Form 2 (database and paper file).
Reference
CDC :BMI obesity rate by state; M #53, #54
CDC Survey: The State of Aging and Health in America report assesses the health status and health behaviors of U.S. adults aged 65 years and older and makes recommendations to improve the mental and physical health of all Americans in their later years. The report includes national- and state-based report cards that examine 15 key indicators of older adult health. Data is available for 2003-2004 and 2006-2007.
NHIS National Health Interview Survey (NHIS)
The National Health Interview Survey (NHIS) has monitored the health of the nation since 1957. NHIS data on a broad range of health topics are collected through personal household interviews. For over 50 years, the U.S. Census Bureau has been the data collection agent for the National Health Interview Survey. Survey results have been instrumental in providing data to track health status, health care access, and progress toward achieving national health objectives.
Variables
Form Type | Variable | ID | Question | History |
|---|---|---|---|---|
Form 1 | Height | 510 | Height in inches: | 2012-10-01 - Variable Added |
Form 1 | Weight | 7813 | Weight in pounds: | 2012-10-01 - Variable Added |
Form 2 | HeightF | 704 | How tall are you without shoes (in Inches)? | 2012-10-01 - Variable Added |
Form 2 | WeightF | 7814 | How much do you weigh without shoes (in Pounds)? | 2012-10-01 - Variable Added |
Codes and Values
ID 510
For Form: [Form 1]
For Variables: [Height]
Code | Description |
|---|---|
666 | Variable Did Not Exist |
888 | Not Applicable (Any Arm Or Leg Amputation) |
999 | Unknown |
ID 7813
For Form: [Form 1]
For Variables: [Weight]
Code | Description |
|---|---|
6666 | Variable Did Not Exist |
8888 | Not Applicable (Any Arm Or Leg Amputation) |
9999 | Unknown |
ID 704
For Form: [Form 2]
For Variables: [HeightF]
Code | Description |
|---|---|
666 | Variable Did Not Exist |
888 | Not Applicable (Any Arm Or Leg Amputation) |
999 | Unknown |
ID 7814
For Form: [Form 2]
For Variables: [WeightF]
Code | Description |
|---|---|
6666 | Variable Did Not Exist |
8888 | Not Applicable (Any Arm Or Leg Amputation) |
9999 | Unknown |
History
Date | Description |
|---|---|
2013-01-01 | Added NOTE: If patient self-report and medical record contradict each other, then use the medical record information for height. |
2014-04-01 | Added CODE : 777 - Not Applicable (Any Arm Or Leg Amputation) to both Height and Weight. |
2014-10-01 | Deleted NOTE : Weight at acute hospitalization should be the first recorded weight in the acute hospital medical record. |
2014-10-01 | Added NOTE : Weight should reflect the first measurement taken during acute hospitalization using a scale or bed scale. If unable to determine if recorded weights were measured using a scale or bed scale, use the first recorded weight in the acute hospital medical record. EMS or paramedic reports should not be used to collect weight. |
2018-07-01 | Added NOTE: If there is a height discrepancy between Form I and any height reported during follow-up, height should be verified at the next follow-up, and the discrepancy should be corrected on the Form I or Form II (database and paper file). |
RACE
Definition
Ethnicity - Self-reported Ethnicity for two categories: “Hispanic, Latino, or Spanish”, and “Not Hispanic, Latino, or Spanish”. To code this variable, participants are asked “Are you of Hispanic, Latino, or Spanish origin?”
Race - Self-Reported racial identification for each of the following five categories: “White”, “Black, African American”, “Asian”, “American Indian or Alaskan Native”, and “Native Hawaiian or other Pacific Islander”. To code these variables, participants are asked “What racial group or groups do you most identify as?”. To account for mixed race, all race categories that a participant indicates should be coded.
Form 1 - Follow-up question is asked if more than one race or ethnicity is asked to capture primary race participant identies as - “If you selected more than one race or ethnicity, with which do you identify most strongly?”
Form
[X] Form 1
[X] Form 2
Source
Form I - Pre-Injury History (participant or proxy)
Form 2 - Interview, Mail-Out (participant or proxy)
Details
Patient’s or significant other’s statement is preferred to hospital record information.
Record participant’s statement regarding his/her race, or record race of father.
In obtaining a statement from the participant regarding his/her race/ethnicity, ambiguity may be resolved by asking which race/ethnicity is more important in his/her daily life.
It is acceptable to collect RACE variables from an SO if individual cannot answer for themselves.
The RACE questions are to be asked only once, NOT at every follow-up.
Characteristics
On 1/15/2023, “What is your race?” was removed from Form 1 data collection and replaced with race questions from Form 2 - “Are you of Hispanic, Latino, or Spanish origin?; and “What racial group or groups do you most identify as? (Select all that apply)”; Race as a single variable is mapped to RacePrimary to ensure consistency with prior data collection
New follow-up question - “If you identified with more than one race in the above questions, what is the race you identify with the most?” was added on 4/1/2023 - This was to insure a crosswalk with the Race variable that was asked prior to the Race Ethnicity split.
Code “6-Biracial or Multiracial” added to Primary Race Question on 10/1/2023
Reference
2000 Census, Department of Commerce: See - External Links
Office of Management and Budgets Federal Register
Revisions to the Standards for the Classification of Federal Data on Race and Ethnicity
Variables
Form Type | Variable | ID | Question | History |
|---|---|---|---|---|
Form 1 | EthnicityF | 674 | Are you of Hispanic, Latino, or Spanish origin? | 2012-10-01 - Variable Added |
Form 1 | RaceWhtF | 742 | White: | 2012-10-01 - Variable Added |
Form 1 | RaceBlkF | 742 | Black, African American: | 2012-10-01 - Variable Added |
Form 1 | RaceAsnF | 742 | Asian: | 2012-10-01 - Variable Added |
Form 1 | RaceIndF | 742 | American Indian, or Alaskan Native: | 2012-10-01 - Variable Added |
Form 1 | RacePIF | 742 | Native Hawaiian or other Pacific Islander: | 2012-10-01 - Variable Added |
Form 1 | RacePrimary | 541 | If you selected more than one race or ethnicity, with which do you identify most strongly? | 2023-04-01 - Variable ADDED |
Form 2 | EthnicityF | 7843 | Are you of Hispanic, Latino, or Spanish origin? | 2012-10-01 - Variable Added |
Form 2 | RaceWhtF | 7844 | White: | |
Form 2 | RaceBlkF | 7844 | Black, African American: | |
Form 2 | RaceAsnF | 7844 | Asian: | |
Form 2 | RaceIndF | 7844 | American Indian or Alaskan Native: | |
Form 2 | RacePIF | 7844 | Native Hawaiian or other Pacific Islander: |
Codes and Values
ID 541
For Form: [Form 1]
For Variables: [RacePrimary]
Code | Description |
|---|---|
1 | White |
2 | Black |
3 | Asian/Pacific Islander |
4 | Native American |
5 | Hispanic Origin |
6 | Biracial or Multiracial |
7 | Other |
88 | Not Applicable |
99 | Unknown |
66 | Variable Did Not Exist |
ID 674
For Form: [Form 1]
For Variables: [EthnicityF]
Code | Description |
|---|---|
0 | No |
1 | Yes |
66 | Variable Did Not Exist |
77 | Refused |
99 | Unknown |
ID 742
For Form: [Form 1]
For Variables: [RaceWhtF, RaceBlkF, RaceAsnF, RaceIndF, RacePIF]
Code | Description |
|---|---|
0 | No |
1 | Yes |
66 | Variable Did Not Exist |
77 | Refused |
99 | Unknown |
ID 7843
For Form: [Form 2]
For Variables: [EthnicityF]
Code | Description |
|---|---|
0 | No |
1 | Yes |
66 | Variable Did Not Exist |
77 | Refused |
99 | Unknown |
ID 7844
For Form: [Form 2]
For Variables: [RaceWhtF, RaceBlkF, RaceAsnF, RaceIndF, RacePIF]
Code | Description |
|---|---|
0 | No |
1 | Yes |
66 | Variable Did Not Exist |
77 | Refused |
99 | Unknown |
History
Date | Description |
|---|---|
1994-09-13 | Added CODE Form 1 : "5 - Hispanic" |
2001-08-20 | Added NOTE : about determining race. |
2003-10-01 | Added NOTE : that person’s or SO’s information is preferred to hospital records. |
2004-04-01 | Added LINK :
|
2013-01-01 | Added NOTE : It is acceptable to collect RACE variables from an SO if individual cannot answer for themselves. |
2013-10-01 | Added NOTE Form 2 : The RACE questions are to be asked only once, NOT at every follow-up. |
2013-10-01 | Changed CODE Form 1 : removed "Negro" from the description on "Black" to match the US census wording. |
2013-10-01 | Changed VARIABLE : changed from "identify with" to "identify as". |
2023-01-15 | Added CHARACTERISTICS: on 1/15/2023, “What is your race?” was removed from Form 1 data collection and replaced with race questions from Form 2 - “Are you of Hispanic, Latino, or Spanish origin?; and “What racial group or groups do you most identify as? (Select all that apply)”; |
RESIDENCE
Definition
Where the person with brain injury is living:
ResInj - residence at the time just prior to injury
ResDis - residence at discharge from Rehabilitation
ResF - residence at the time of follow-up evaluation, according to the best source of information (person with brain injury unless unavailable or unreliable)
Residence Codes
1 - Private Residence Includes house, apartment, mobile home, foster home, condominium, dormitory (school, church, college), military barracks, boarding school, boarding home, rooming house, bunk-house, boys ranch, fraternity/sorority house, commune, migrant farmworkers camp
2 - Nursing Home/Subacute Care Includes medi-center, residential, institutions licensed as hospitals but providing essentially long-term, custodial, chronic disease care, etc.
3 - Adult Home Includes adult foster care, indep. living center, transitional living facility, assisted living, supported living, group home
4 - Correctional Institution Includes prison, jail, penitentiary, correctional center, labor camp, halfway house, etc.
5 - Hotel/Motel Includes YWCA, YMCA, guest ranch, inn
6 - Homeless Includes a shelter for the homeless
9 - Hospital: Other Includes mental hospital, inpatient drug treatment
Form
[X] Form 1
[X] Form 2
Source
Form 1 ResInj - Pre-Injury History (participant or proxy)
Form 1 ResDis - Abstraction (rehab record)
Form 2 ResF - Interview, Mail-Out (participant or proxy)
Details
If there is uncertainty regarding residence, treat it as a self-report variable. If residence is not clear, a reliable respondent (when possible, the person with TBI) should be asked, eg., “Where were you [the person with TBI] living (‘prior to injury’, or at ‘follow-up’)?”. If the response is ambiguous (as may happen, eg., if the person is transient) use probes in order to adequately understand the respondent’s belief regarding residence, then code that. Do not probe to obtain additional objective information about the living situation and then (the data collector) use that information in determining the correct code. When residence is at all ambiguous, treat it as a self-report variable.
Patients discharged to temporary living facilities while still enrolled in outpatient programs should be coded according to the level of supervision or assistance they receive. If the facility is for the use of patients and their families, code these transitional residences as “private residence” rather than an “adult home/transitional living facility”, as supervision or assistance in this setting would be provided by the family member or the attendant residing with the person, rather than by a staff overseeing a group of individuals which is more typical in an “adult home/transitional living facility.”
If participant is still in the hospital at follow-up, data collectors are encouraged to find out reason for hospitalization and if they will be discharged while still in the follow-up window. If participant is expected to still be hospitalized when the window closes, then code as ‘7-Hospital (Acute Care)’.
Code government or non-profit subsidized SRO (Single Resident Occupancy) housing as “3-Adult Home (Includes adult foster care, independent living center, transitional living facility, assisted living, supported living, group home)”. Even though some of these vary from a single private room within a larger building or a full apartment, the space that they occupy could be viewed as a transitional and supported living situation given that it is not a permanent housing solution and/or it is funded by government/subsidy.
Participants living in a boat, RV or other living situation where they “take their home with them” should be coded as “Private Residence”.
Links
Characteristics
Deleted the category “shelter” from code 01 and moved it to 06 as “shelter for the homeless” as of 10/1/2004 meaning that prior to this date, persons in that category are in 01 and after that date they are in 06.
Variables
Form Type | Variable | ID | Question | History |
|---|---|---|---|---|
Form 1 | ResDis | 548 | Residence after rehab discharge: | 1989-10-01 - Variable Added |
Form 1 | ResInj | 549 | Before the injury, where were you living? | 1989-10-01 - Variable Added |
Form 2 | ResF | 764 | Where do you live now? | 1989-10-01 - Variable Added |
Codes and Values
ID 548
For Form: [Form 1]
For Variables: [ResDis]
Code | Description |
|---|---|
1 | Private Residence ( Includes house, apartment, mobile home, foster home, condominium, dormitory (school, church, college), military barracks, boarding school, boarding home, rooming house, bunk-house, boys ranch, fraternity/sorority house, commune, migrant farmworkers camp ) |
2 | Nursing Home/Subacute Care ( Includes medi-center, residential, institutions licensed as hospitals but providing essentially long-term, custodial, chronic disease care, etc. ) |
3 | Adult Home ( Includes adult foster care, indep. living center, transitional living facility, assisted living, supported living, group home ) |
4 | Correctional Institution ( Includes prison, jail, penitentiary, correctional center, labor camp, halfway house, etc. ) |
5 | Hotel/Motel ( Includes YWCA, YMCA, guest ranch, inn ) |
6 | Homeless ( Includes a shelter for the homeless ) |
7 | Hospital: Acute care |
8 | Hospital: Rehabilitation |
9 | Hospital: Other ( Includes mental hospital, inpatient drug treatment ) |
10 | Other |
888 | Not Applicable: Expired in rehab |
999 | Unknown |
ID 549
For Form: [Form 1]
For Variables: [ResInj]
Code | Description |
|---|---|
1 | Private Residence ( Includes house, apartment, mobile home, foster home, condominium, dormitory (school, church, college), military barracks, boarding school, boarding home, rooming house, bunk-house, boys ranch, fraternity/sorority house, commune, migrant farmworkers camp ) |
2 | Nursing Home/Subacute Care ( Includes medi-center, residential, institutions licensed as hospitals but providing essentially long-term, custodial, chronic disease care, etc. ) |
3 | Adult Home ( Includes adult foster care, indep. living center, transitional living facility, assisted living, supported living, group home ) |
4 | Correctional Institution ( Includes prison, jail, penitentiary, correctional center, labor camp, halfway house, etc. ) |
5 | Hotel/Motel ( Includes YWCA, YMCA, guest ranch, inn ) |
6 | Homeless ( Includes a shelter for the homeless ) |
7 | Hospital: Acute care |
8 | Hospital: Rehabilitation |
9 | Hospital: Other ( Includes mental hospital, inpatient drug treatment ) |
10 | Other |
999 | Unknown |
ID 764
For Form: [Form 2]
For Variables: [ResF]
Code | Description |
|---|---|
1 | Private Residence ( Includes house, apartment, mobile home, foster home, condominium, dormitory (school, church, college), military barracks, boarding school, boarding home, rooming house, bunk-house, boys ranch, fraternity/sorority house, commune, migrant farmworkers camp ) |
2 | Nursing Home/Subacute Care ( Includes medi-center, residential, institutions licensed as hospitals but providing essentially long-term, custodial, chronic disease care, etc. ) |
3 | Adult Home ( Includes adult foster care, indep. living center, transitional living facility, assisted living, supported living, group home ) |
4 | Correctional Institution ( Includes prison, jail, penitentiary, correctional center, labor camp, halfway house, etc. ) |
5 | Hotel/Motel ( Includes YWCA, YMCA, guest ranch, inn ) |
6 | Homeless ( Includes a shelter for the homeless ) |
7 | Hospital: Acute care |
8 | Hospital: Rehabilitation |
9 | Hospital: Other ( Includes mental hospital, inpatient drug treatment ) |
10 | Other |
999 | Unknown |
History
Date | Description |
|---|---|
1994-08-19 | Deleted NOTE : regarding collecting data from subject and SO. |
1994-08-19 | Deleted CODE Form 2 : "Not Applicable: Expired in rehab" |
1994-09-13 | Added CODE : Added "adult foster care” to code "3 - Adult Home". |
1995-07-01 | Changed CODE : removed "skilled nursing facility" from code 2 - Nursing Home". |
1995-07-01 | Changed CODE : Moved "dormitory (school, church, college), military barracks, boarding school, boarding home, rooming house, bunk-house, boys ranch, fraternity/sorority house, commune, migrant farmworkers camp" from code "3 - Adult Home" to "1 - Private Residence". |
1995-07-01 | Added CODE : "10=subacute (includes subacte hospital bed, skilled nursing facility)". |
1996-04-01 | Changed CODE : added "halfway house" to description of code "4 - Correctional Institution". |
2001-08-20 | Changed CODE Form 2: added “inpatient drug treatment program” to “9 - Hospital-Other". |
2004-08-19 | Added NOTE : temporary living facilities while still enrolled in outpatient programs should be coded according to the level of supervision or assistance they receive. |
2004-10-01 | Changed CODE Form 1: added “inpatient drug treatment program” to “9 - Hospital-Other”. |
2004-10-01 | Changed CODE : deleted "shelter" as a category of "1 -Private". |
2004-10-01 | Changed CODE : added "shelter for the homeless" to code "6 - Homeless". |
2005-01-01 | Added NOTE : how to determine residence if not clear. |
2006-09-05 | Changed CODE Form 2: added "assisted living, supported living" to code "3 - Adult Home". |
2013-12-08 | Added NOTE : regarding SRO (Single Resident Occupancy) coding. |
2016-01-01 | Added NOTE: if participant is still in the hospital at follow-up and is expected to still be hospitalized when the window closes, then code as '7-Hospital (Acute Care)'. |
2018-10-01 | Changed CODES : merged codes "2 - Nursing Home" and "10 - Subacute Care" to "2 - Nursing Home/Subacuate Care". |
2022-07-01 | Added NOTE : Participants living in a boat, RV or other living situation where they "take their home with them" should be coded as "Private Residence". |
SEX
Definition
Current sex of subject
Form
[X] Form 1
[ ] Form 2
Source
Abstraction (acute or rehab record)
Details
If transgender, record current sex.
Variables
Form Type | Variable | ID | Question | History |
|---|---|---|---|---|
Form 1 | SexF | 554 | Sex: | 1989-10-01 - Variable Added |
Form 2 | SexF | 4026 | Sex |
Codes and Values
ID 554
For Form: [Form 1]
For Variables: [SexF]
Code | Description |
|---|---|
1 | Female |
2 | Male |
99 | Unknown |
ID 4026
For Form: [Form 2]
For Variables: [SexF]
Code | Description |
|---|---|
1 | Female |
2 | Male |
99 | Unknown |
History
Date | Description |
|---|---|
1994-09-13 | Deleted CODE : "7 - other". |
2001-08-20 | Added NOTE : about transsexual. |
2025-10-01 | Changed "transsexual " to "transgender" in Details. |
TRANSPORTATION
Definition
Indicates the primary mode of motorized vehicular transportation, according to the best source of information (person with brain injury unless unavailable or unreliable).
Form
[ ] Form 1
[X] Form 2
Source
Form 2 - Interview, Mail-out (participant or proxy)
Details
Taxi, Uber and Lyft should be coded as ‘Public Transit’.
Electric scooters/E-bikes, as well as motorized wheelchairs should be coded as 1- Drives Vehicle.
Variables
Form Type | Variable | ID | Question | History |
|---|---|---|---|---|
Form 2 | TransModeF | 783 | What is your primary method of motorized transportation? | 1989-10-01 - Variable Added |
Codes and Values
ID 783
For Form: [Form 2]
For Variables: [TransModeF]
Code | Description |
|---|---|
1 | Drives Vehicle |
2 | Rides with Someone Else |
3 | Public Transit |
4 | Special Bus or Van Service |
81 | Not Applicable: Variable not due this year ( Code no longer used; data now collected in all follow-up years ) |
82 | Not Applicable: No motorized transportation |
99 | Unknown |
History
Date | Description |
|---|---|
2002-10-14 | Added DEFINITION : “motorized” to variable label and to definition. |
2002-10-14 | Added CODE : “5 NA-no/negligible motorized transportation”. |
2018-07-01 | Added CODE : the code for "Not due this year" plus a statement that this code is no longer used. |
2023-07-01 | Added NOTE: Electric scooters/E-bikes, as well as motorized wheelchairs should be coded as 1- Drives Vehicle. |
DEMOGRAPHICS - CALCULATED
Definition
AGE, AGEF - This calculated variable determines the precise age, in full years, of the participant by comparing their fixed Date of Birth (Birth) against a flexible Reference Date (Injury Date or Follow-up Date). This logic is designed to be mathematically accurate, ensuring that the age in years reflects whether the participant’s birthday had passed as of the specified reference date.
AGENoPHI - Age Calculated for Non-PHI calculates age at injury without Protected Health Information by grouping people greater than or equal to the age of 89 so they can’t be identified.
BMI, BMIF - (Body Mass Index at Injury) (kg/m2) is calculated from height in inches and weight in pounds as [weight(lbs)/height(in)^2]*703
BMICat, BMICatF classifies BMI into categories between severely underweight to very severely obese, using the BMI calculated from height and weight
RuralF (Urbanicity) - Urbanization based on zip code of address.
Notes
BMI, BMIF - If height or weight is not available or a subject had an arm or leg amputation, then BMI is not calculated.
- Computes BMI = Weight /Square(Height) *703 - 888 or 777 is BMI is not available or subject had an arm or leg amputation
- 999 or NULL is BMI is unknown
RURALF - Urbanicity classifies a person’s location as urban, rural, or suburban based on their zip code. The mapping of zip codes to these categories come from a dataset located at http://greatdata.com/rural-urban-data/.
Variables
Form Type | Variable | ID | Question | History |
|---|---|---|---|---|
Form 1 | AGE | 392 | Age at Injury | 1989-10-01 - Variable Added |
Form 1 | BMI | 3348 | BMI at Injury | 2012-10-01 - Variable Added |
Form 1 | AGENoPHI | 393 | Age Calculated for NonPHI | 2009-10-01 - Variable Added |
Form 1 | BMICat | 409 | BMI Category | 2012-10-01 - Variable Added |
Form 1 | RURALadm | 4153 | Urbanization based on zip code of address at admission. | |
Form 1 | RURALdc | 4153 | Urbanization based on zip code of address at discharge. | |
Form 2 | AGEF | 573 | Age at Follow-Up | 1989-10-01 - Variable Added |
Form 2 | BMICatF | 600 | BMI Category | 2012-10-01 - Variable Added |
Form 2 | RuralF | 765 | Urbanicity | 2012-10-01 - Variable Added |
Form 2 | AGENoPHIF | 574 | Age at Follow-Up (No PHI Version) | 1989-10-01 - Variable Added |
Form 2 | BMIF | 3597 | BMI at Followup | 2012-10-01 - Variable Added |
Codes and Values
ID 3348: No codes found.
ID 392
For Form: [Form 1]
For Variables: [AGE]
Code | Description |
|---|---|
9999 | Unknown |
ID 393
For Form: [Form 1]
For Variables: [AGENoPHI]
Code | Description |
|---|---|
777 | 89 Years Old or Older |
999 | Unknown |
ID 409
For Form: [Form 1]
For Variables: [BMICat]
Code | Description |
|---|---|
1 | Very severely underweight |
2 | Severely underweight |
3 | Underweight |
4 | Normal |
5 | Overweight |
6 | Obese Class I |
7 | Obese Class II |
8 | Obese Class III |
ID 4153
For Form: [Form 1]
For Variables: [RURALadm, RURALdc]
Code | Description |
|---|---|
1 | Rural |
2 | Urban |
3 | Suburban |
ID 3597: No codes found.
ID 573
For Form: [Form 2]
For Variables: [AGEF]
Code | Description |
|---|---|
9999 | Unknown |
ID 574
For Form: [Form 2]
For Variables: [AGENoPHIF]
Code | Description |
|---|---|
777 | 89 Years Old or Older |
999 | Unknown |
ID 600
For Form: [Form 2]
For Variables: [BMICatF]
Code | Description |
|---|---|
1 | Very severely underweight |
2 | Severely underweight |
3 | Underweight |
4 | Normal |
5 | Overweight |
6 | Obese Class I |
7 | Obese Class II |
8 | Obese Class III |
99 | Unknown |
ID 765
For Form: [Form 2]
For Variables: [RuralF]
Code | Description |
|---|---|
1 | Rural |
2 | Urban |
3 | Suburban |
History
No history found for the Domain.
GEOGRAPHIC IDENTIFIERS (GEO-ID) - CALCULATED
Definition
PURPOSE: To allow an estimate of the extent and type of health care services available in the participant’s vicinity to evaluate how community impacts outcomes.
The geographic identifier (geo-id) variables listed below are retrieved quarterly from the U.S. Census website. They are aligned with a TBIMS participant’s address, which is collected at Form 2. An individual subject may have multiple addresses (collected at different follow-up time points) and therefore multiple sets of geo-id variables. At each quarterly submission, new geo-id variables are added to correspond to newly-collected addresses. If a participant did not consent to have their address collected, they will not have any geo-id data associated with them. All of the following variables are of String type.
- CensusTract – This is a unique, 11-digit code that identifies a census tract within a certain state/county. Census tract numbers are not unique across states and counties. This 11-digit code has been concatenated with a 2-digit state code (StateCode) and a 3-digit county code (CountyCode) to form a unique, 11-digit census tract code.
- CensusBlock – This is a non-unique, 4-digit census block code from the U.S. Census. Census block numbers are not unique across states and counties. This code must be concatenated with a 2-digit state code (StateCode) and a 3-digit county code (CountyCode) to form a unique, 9-digit census block code.
- StateCode – This is a 2-digit state code from the U.S. Census.
- CountyCode – This is a 3-digit county code from the U.S. Census.
- TractString – This is a non-unique, 6-digit census tract code from the U.S. Census. Census tract numbers are not unique across states and counties. This code is concatenated with the 2-digit state code (StateCode) and the 3-digit county code (CountyCode) to form the CensusTract variable.
Variables
Form Type | Variable | ID | Question | History |
|---|---|---|---|---|
Form 2 | CensusBlock | Census Block | ||
Form 2 | CensusTract | The 11-digit census tract that is a concatenation of STATEA, COUNTYA, and TRACTA | ||
Form 2 | CountyCode | County code from U.S. Census | ||
Form 2 | StateCode | State Code from U.S. Census | ||
Form 2 | TRACTA | This is a non-unique, 6-digit census tract code from the U.S. Census. Census tract numbers are not unique across states and counties. This code is concatenated with the 2-digit state code (StateCode) and the 3-digit county code (CountyCode) to form the CensusTract variable. |
Codes and Values
ID NA: No codes found.
History
No history found for the Domain.
RACE - CALCULATED
Definition
RaceSummary – Single race value for participants
RaceSource – Source of RaceSummary value
RaceDetail – List of Race Indicator variables selected if more than one
RaceNotes – Origin of “Other” value in original race variable
History
The following is a timeline of the evolution of the race and ethnicity variables in the TBIMS NDB.
1 Oct 1989 – 1 Oct 2012
The original Form 1 race variable in the TBIMS National Database (NDB) was called Race. Its categories included the following:
1 = White
2 = Black
3 = Asian/Pacific Islander
4 = Native American
5 = Hispanic Origin (added code Sept 13, 1994)
7 = Other, Unclassified
9 = Unknown
Participants could choose only one race for their self-identification. These responses were asked at and stored in Form 1 with one set of responses per participant.
1 Oct 2012
On 1 Oct 2012, six separate race/ethnicity questions were added to the Form 2 follow-up interview and stored in the Form 2 dataset. Called “Race Indicator variables”, the responses were 0 = No, 1 = Yes, 77 = Refused, 88 = Variable Did Not Exist, and 99 = Unknown.
The questions and variables were as follows:
Are you of Hispanic, Latino, or Spanish origin?
• Ethnicity
What racial group or groups do you most identify with? (Ask each separately; you can select more than one.)
• RaceWht (White)
• RaceBlk (Black, African American)
• RaceAsn (Asian)
• RaceInd (American Indian or Alaskan Native)
• RacePI (Native Hawaiian or Other Pacific Islander)
With these six separate questions, participants who had originally preferred to identify as multiracial but had no way to do so were able to select more than one race and/or ethnicity they identified with. However, the Form 1 Race variable still forced participants to select only one category.
These six questions were asked only at the first completed Form 2 follow-up after 1 Oct 2012. Once the six questions were asked, they were not asked again.
Participants enrolled and followed prior to 1 Oct 2012 were asked this question at their next follow-up after 1 Oct 2012, providing an opportunity to backfill this information for them. The NDB should thus have complete data on nearly all participants with follow-up interviews after 1 Oct 2012. However, the backfilled data may be biased as not all participants have had the opportunity to answer this question (i.e., those without a completed follow-up, such as those recorded as lost, withdrawn, incarcerated, expired, or center lost funding).
15 January 2016
As evidenced in the NDSC’s archived cuts of the NDB datasets, starting with 2015 Q4, the Race Indicator variables were included in the Form 1 dataset that was given to researchers, along with the Race variable. They were no longer included in the Form 2 dataset. This does not mean that the Indicator variable questions began to be asked at Form 1 here; they were simply moved to the Form 1 dataset. The categories for the Race variable at this timepoint were as follows:
1 = White
2 = Black
3 = Asian/Pacific Islander
4 = Native American
5 = Hispanic Origin
7 = Other
9 = Unknown
15 January 2023
On 15 January 2023, the Race variable was removed from Form 1 and replaced with the Race Indicator variable questions.
Per the Data Dictionary Characteristics section at the time: “we removed the “What is your race” question and replaced it with “race questions from Form 2” plus the ethnicity question “Are you of Hispanic, Latino, or Spanish origin?” and “What racial group or groups do you most identify as? (Select all that apply).”
1 April 2023
A new question was added to be asked at Form 2 data collection after the Race Indicator questions are asked: “If you identified with more than one race in the above questions, what is the race you identify with the most?” This is the RacePrimary variable, which was added to attempt a crosswalk with the original Race variable.
Valid responses to the RacePrimary variable included:
1 = White
2 = Black
3 = Asian/Pacific Islander
4 = Native American
5 = Hispanic Origin
7 = Other
88 = Not Applicable
99 = Unknown
Note that the RacePrimary variable is asked ONLY for those who selected Yes to more than one race/ethnicity indictor question. If they selected only one, RacePrimary is coded as 88 = Not Applicable. This is an important point when analyzing the race data.
Even though the Race Indicator variables were now asked at both Form 1 and Form 2, RacePrimary was still asked only at Form 1. This is because the Race Indicators at Form 2 were being used only to backfill data, and the existing Race variable answer was assumed to be the race a participant most identified with; whereas RacePrimary needed to be asked at Form 1 enrollment when the participant had not yet selected any race.
In terms of data storage, the Race and RacePrimary variables have always been stored separately, but they were linked algorithmically to provide only one answer for a participant.
All race questions are asked only once: if a participant has already answered, they are not asked again. One unexplained quirk of the data is that some participants have changed their response from the original Race variable to when they were asked the Race Indicator variables. If these responses do not correspond, it could be a data entry error, or the participant changed their response for some other reason. There is no way to know.
1 October 2023
The “Biracial or Multiracial” code was added as a response option for the RacePrimary variable, with the full set of responses including the following:
1 = White
2 = Black
3 = Asian/Pacific Islander*
4 = Native American
5 = Hispanic Origin
6 = Biracial or Multiracial
7 = Other
88 = Not Applicable
99 = Unknown
The responses for the Race Indicator variables on this date are the following, which are slightly different than when these variables were introduced:
0 = No
1 = Yes
66 = Variable Did Not Exist
77 = Refused
99 = Unknown
The Data Dictionary noted at this time that a person’s self-report is preferred to hospital records. A data collector should only use medical records if they cannot obtain a self-reported answer.
*Regarding Value Code 3 for the Race and RacePrimary variables, around 1996, the US Census separated these race categories. However, the TBIMS didn’t ask them separately until 2012 with the introduction of the Race Indicator variables at Form 2. Value Code 3 continues to be Asian/Pacific Islander at Form 1 in the RacePrimary variable.
15 January 2026
Four new variables were added to address the problem of not having a single, succinct race/ethnicity variable to be used as a covariate or in reporting on the demographics of the NDB. The first variable, RaceSummary, is such a variable. The second variable, RaceSource, contains the source of the value in RaceSummary. The third and fourth variables, RaceDetail and RaceNotes, contain extra information that adds to the understanding of a participant’s RaceSummary value but is not found elsewhere.
RaceSummary
The purpose of the RaceSummary variable is to create a variable with ONE value per participant that designates how they perceive their own race/ethnicity. The following are the categories for this variable:
0 = No to All Race Indicators
10 = White only
20 = Black/African American only
30 = Asian only
40 = Native Hawaiian or Other Pacific Islander only
50 = Hispanic Origin only
60 = American Indian or Alaskan Native only
70 = Multiple Races/Ethnicities
80 = Other
777 = Refused
999 = Unknown
- The overarching intent is to honor participants’ responses to the Race Indicator variables since they represent a self-identification that is the most recent response to any race/ethnicity questions.
- If a participant has selected only one race in the Race Indicator variables, that value is recorded in the RaceSummary variable.
- If a participant has selected more than one race in the Race Indicator variables, the 70 = Multiple Races value is recorded.
- In this instance, all races selected in the Race Indicator variables will be noted in the RaceDetail variable. See below.
- If a participant has answered No to all the Race Indicator variables, the 0 = No to all Race Indicators value is recorded. Note that this does not mean that their answer is Unknown, but rather that they do not identify with any of the Race Indicator choices.
- Even if such a participant has a race/ethnicity identified in the original Race variable, it will be ignored under the intent to honor the participant’s most recent response, which is 0 = No to all Race Indicators.
- If a participant selected Refused for the Race Indicator variables, the 77 = Refused is recorded.
- Even if such a participant has a race/ethnicity identified in the original Race variable, it will be ignored under the intent to honor the participant’s most recent response, which is 77 = Refused.
- If the Race Indicator values are missing (Variable Did Not Exist or Unknown), whatever the participant selected for the original Race variable is recorded.
- Note that the original Race variable categories are White, Black, Asian/Pacific Islander, Native American, Other, and Unknown, which do not quite match the Race Indicator values. To address this mismatch:
- If a participant selected Other or Asian/Pacific Islander in the original Race variable, 80 = Other will be recorded in the RaceSummary variable AND a note to this effect will be included in the RaceNotes variable. See below.
- If the value in the original Race variable is Unknown, 99 = Unknown will be recorded in the RaceSummary variable.
- The RacePrimary variable values were not included in this algorithm because as of this date very few participants in the NDB have been asked its question (What is the race you identify with the most?). Since the majority of NDB participants do have recent information in the Race Indicator variables, it was decided to use them as the basis for the RaceSummary variable to be consistent across as many participants as possible. Additionally, the information provided by the RacePrimary variable is of a different type than the Race Indicator variables.
- It was decided to create a Multiple Races category for the RaceSummary variable and NOT a Multiracial category, per findings from the Pew Research Group (Source: https://www.pewresearch.org/social-trends/2015/06/11/multiracial-in-america/#the-multiracial-identity-gap) To wit:
- Only four-in-ten adults with a mixed racial background (39%) say they consider themselves to be “mixed race or multiracial.” Fully 61% say they don’t consider themselves to be multiracial.
- When asked why they don’t identify as multiracial, about half (47%) say it is because they look like one race. An identical share say they were raised as one race, while about four-in-ten (39%) say they closely identify with a single race. And about a third (34%) say they never knew the family member or ancestor who was a different race.
- For some mixed-race Americans, the pressure to identify as a single race is a significant part of the multiracial experience. According to the survey, about one-in-five (21%) say they have felt pressure from friends, family or “society in general” to identify as a single race.
RaceSource
The purpose of the RaceSource variable is to specify the source of the value in the RaceSummary variable. The following are the categories for this variable:
1 = Race Indicator variables
2 = Original Race variable
RaceDetail
The purpose of the RaceDetail variable is to provide a space to list which Race Indicators were specified if the participant’s value in RaceSummary is 70 = Multiple Races. This information is useful for researchers to be able to select a sample of all those who identify or have identified as a particular race/ethnicity at any time.
The following is an example of what this data looks like:
| Participant | RaceSummary | RaceSource | RaceDetail |
|---|---|---|---|
| 1 | 70 | Race Indicator | 10,20 |
| 2 | 70 | Race Indicator | 10,30 |
| 3 | 70 | Race Indicator | 10,40 |
| 4 | 70 | Race Indicator | 10,50 |
| 5 | 70 | Race Indicator | 20,30 |
| 6 | 70 | Race Indicator | 30,50 |
| 7 | 70 | Race Indicator | 10,20,30 |
| 8 | 70 | Race Indicator | 10,20,50 |
| 10 | 70 | Race Indicator | 10,20,60 |
| 11 | 70 | Race Indicator | 10,30,40 |
| 12 | 70 | Race Indicator | 10,20,30,60 |
| 13 | 70 | Race Indicator | 20,30,40,60 |
| 14 | 70 | Race Indicator | 10,20,30,40,50 |
| 15 | 70 | Race Indicator | 10,20,30,40,50,60 |
The values in the RaceDetail column correspond to the value codes for the RaceSummary variable, even though they come from the Race Indicator variables. So “10,20” means that participant has selected both White and Black in the Race Indicator variables. The RaceDetail variable uses the RaceSummary value codes to enable researchers to accurately select a sample. For example, if a researcher wanted to select participants who had identified as Asian at any point, they would use the 30 = Asian only value code in the RaceSummary variable PLUS any RaceDetail value that includes the number 30.
RaceNotes
The purpose of the RaceNotes variable is to provide a space to specify whether the participant responded Other or Asian/Pacific Islander in the original Race variable, if the RaceSummary value is 80 = Other. The algorithm has no way of determining whether this participant is Asian or Pacific Islander, so the information is presented for researchers to make their own decisions based on the needs of their study.
The following is an example of what this data looks like:
| Participant | RaceSummary | RaceSource | RaceNotes |
|---|---|---|---|
| 1 | 80 | Race Variable | 30 or 40: Answered Asian/Pacific Islander in original Race variable |
| 2 | 80 | Race Variable | No Indicator variable selections; selected Other in original Race variable |
We have included the “30 or 40” text in the RaceNotes variable to enable researchers to search on it for their study purposes. A Final Note: Beginning on 15 January 2026, Form 1 datasets will include ALL race/ethnicity variables listed above that have been collected over time. This will enable researchers to select which variable(s) best suit the needs of their study.
Variables
Form Type | Variable | ID | Question | History |
|---|---|---|---|---|
Form 1 | RaceDetail | If Multiple Races, List | ||
Form 1 | RaceNotes | Further explanation, if needed | ||
Form 1 | RaceSource | Source Variable for Race Question (changed over time) | ||
Form 1 | RaceSummary | 19662 | Race Summary Variable |
Codes and Values
ID 19662
For Form: [Form 1]
For Variables: [RaceSummary]
Code | Description |
|---|---|
0 | No to All Race Indicators |
10 | White only |
20 | Black/African-American only |
30 | Asian only |
40 | Native Hawaiian or Other Pacific Islander only |
50 | Hispanic Origin only |
60 | American Indian or Alaskan Native only |
70 | Multiple Races |
80 | Other |
777 | Refused |
999 | Unknown |
ID NA: No codes found.
History
No history found for the Domain.
SOCIOECONOMIC STATUS - CALCULATED
Definition
PURPOSE: To provide information on aspects of the socioeconomic status (SES) in the participant’s vicinity to evaluate how community impacts outcomes.
SES variables were downloaded from the IPUMS (originally, the “Integrated public Use Microdata Series”) website that houses data from the American Community Survey. The SES variables align with census tracts, not TBIMS participants. A TBIMS participant may have multiple census tracts associated with them, one for each follow-up interview where they consented to have their address collected. If a participant did not consent to have their address collected, they will not have any SES data associated with them. Additional variables that provide metadata (information about when the SES data was collected) are included as well. All of the following variables are of String type.
GeoYear – The five-year aggregate American Community Survey dataset that indicates the year the SES variables were collected. For example, a value of 2015-2019 indicates that the SES variables were collected in 2019.
TBIMS_NSDI_2019 – This variable contains a value that indicates the neighborhood disadvantage of a census tract, called the TBI Model Systems Neighborhood Socioeconomic Disadvantage Index. The value can be negative or positive. Positive values indicate more disadvantage. The TBI Model Systems Neighborhood Socioeconomic Disadvantage Index was calculated in 2019 using the first dimension of a principal components analysis of eight census-tract SES indicators (Percent unemployed, Percent Single Parent Led Households, Percent no HS or GED, Percent Bachelor’s Degree or Higher, Percent below the poverty line, Percent of households that were on food stamps/SNAP, Median Household Income, Median Family Income). The index did NOT use the race/ethnicity variables (PercentWhite, PercentBlack, PercentHispanic) in their construction. You can find the specifics of this variable’s creation in Kumar RG, Delgado A, Corrigan JD, Eagye CB, Whiteneck GG, Juengst SB, Callender L, Bogner J, Pinto SM, Rabinowitz AR, Perrin PB, Venkatesan UM, Botticello AL, Lequerica AH, Taylor S, Zafonte RD, Dams-O’Connor K. (2024). The TBI Model Systems Neighborhood Socioeconomic Disadvantage Index (TBIMS-NSDI): Development and Comparison to Individual Socioeconomic Characteristics. J Head Trauma Rehabil. There will be a new TBIMS_NSDI variable every ten years, separate from this one, denoted by the 4-digit year at the end of the variable name.
GeoStatus – This is an indicator variable with a value of Interim or Final. The most recent SES status variables come from the 2015-2019 date range in the American Community Survey (ACS), which is where the data is sourced. There is typically a two-year lag between when the ACS data is collected and when it is available to the public. Therefore, it is possible to have a TBIMS participant’s follow-up date be more recent than the GeoYear. The GeoStatus variable shows whether the date of collection of the SES variables lags the follow-up interview date when a participant’s address was collected (Interim), or whether the two dates match (Final).
PercentUnemployed – The percentage of civilian unemployed (people 16 and over). The formula used to create PercentUnemployed is (# civilian unemployed / # in labor force).
PercentSingleHoH – The percentage of single parent headed households with children <18. The formula used to create PercentUnemployed is ((# male household + # female household) / # in family households).
PercentNoHSorGED – The percentage of people >=25 years old without a high school diploma or GED. The formula used to create PercentNoHSorGED is (No schooling completed + Nursery school + Kindergarten + 1st through 11th grade + 12th grade, no diploma)/Total in CensusTract.
PercentBSorUp – The percentage of of people >=25 years old with a bachelors degree or higher. The formula used to create PercentBSorUp is (Bachelor’s degree + Master’s degree + Professional school degree + Doctorate degree) / Total in CensusTract.
PercentBelowPoverty – The percentage of households with incomes in the past 12 months below poverty level. The formula used to create PercentBelowPoverty is (Income in the past 12 months below poverty level / Total for income versus poverty level).
PercentSNAP – The percentage of households that received Food Stamps/SNAP in the past 12 months. The formula used to create PercentSNAP is (Household received Food Stamps-SNAP in the past 12 months / Total for receipt of SNAP).
MedHHIncome – Median household income in the past 12 months (in inflation-adjusted dollars).
MedFamIncome – Median family income in the past 12 months (in inflation-adjusted dollars).
PercentWhite – The percentage of White Alone in the CensusTract. The formula used to create PercentWhite is (White alone / Total for Race). This variable is not included in the SESIndex variable calculation.
PercentBlack – The percentage of Black or African American Alone in the CensusTract. The formula used to create PercentBlack is (Black or African American alone / Total for Race). This variable is not included in the SESIndex variable calculation.
PercentHispanic– The percentage of Hispanic or Latino in the CensusTract. The formula used to create PercentHispanic is (Hispanic or Latino / Total for Hispanic/Latino). This variable is not included in the SESIndex variable calculation.
STATEA – State Code from U.S. Census
GeoState – State name
COUNTYA – County code from U.S. Census
GeoCounty – County name
Variables
Form Type | Variable | ID | Question | History |
|---|---|---|---|---|
Form 2 | ACSYEARS | The five-year aggregate dataset imported from IPUMS. | ||
Form 2 | GeoCounty | County name | ||
Form 2 | GeoState | State name | ||
Form 2 | GeoStatus | This is an indicator variable with a value of Interim or Final. The most recent SES status variables come from the 2015-2019 date range in the American Community Survey (ACS), which is where the data is sourced. There is typically a two-year lag between when the ACS data is collected and when it is available to the public. Therefore, it is possible to have a TBIMS participant’s follow-up date be more recent than the GeoYear. The GeoStatus variable shows whether the date of collection of the SES variables lags the follow-up interview date when a participant’s address was collected (Interim), or whether the two dates match (Final). | ||
Form 2 | GeoYear | Year Geo Data Collected | ||
Form 2 | MedFamIncome | Median family income for the census tract in the past 12 months (in final ACS year inflation-adjusted dollars) | ||
Form 2 | MedHHIncome | Median household income for the census tract in the past 12 months (in final ACS year inflation-adjusted dollars) | ||
Form 2 | PercentBSorUp | The percentage of of people >=25 years old with a bachelors degree or higher. The formula used to create PercentBSorUp is (Bachelor's degree + Master's degree + Professional school degree + Doctorate degree) / Total in CensusTract. | ||
Form 2 | PercentBelowPoverty | The percent of households in the census tract with incomes in the past 12 months below poverty level. The formula used to create PercentBelowPoverty is (Income in the past 12 months below poverty level / Total for income versus poverty level). | ||
Form 2 | PercentBlack | The percentage of Black or African American Alone in the CensusTract. The formula used to create PercentBlack is (Black or African American alone / Total for Race). This variable is not included in the SESIndex variable calculation. | ||
Form 2 | PercentHispanic | The percentage of Hispanic or Latino in the CensusTract. The formula used to create PercentHispanic is (Hispanic or Latino / Total for Hispanic/Latino). This variable is not included in the SESIndex variable calculation. | ||
Form 2 | PercentNoHSorGED | The percentage of people >=25 years old without a high school diploma or GED. The formula used to create PercentNoHSorGED is (No schooling completed + Nursery school + Kindergarten + 1st through 11th grade + 12th grade, no diploma)/Total in CensusTract. | ||
Form 2 | PercentSNAP | The percent of households in the census tract who received food stamps/SNAP in the past 12 months | ||
Form 2 | PercentSingleHoH | The percentage of single parent headed households with children <18. The formula used to create PercentUnemployed is ((# male household + # female household) / # in family households). | ||
Form 2 | PercentUnemployed | The percentage of civilian unemployed (people 16 and over). The formula used to create PercentUnemployed is (# civilian unemployed / # in labor force). | ||
Form 2 | PercentWhite | The percentage of White Alone in the CensusTract. The formula used to create PercentWhite is (White alone / Total for Race). This variable is not included in the SESIndex variable calculation. | ||
Form 2 | TBIMS_NSDI_2019 | indicates the neighborhood disadvantage of a census tract | 2024-07-01 - Variable Name Changed: SESIndex2019 was changed to TBIMS_NSDI_2019 |
Codes and Values
ID NA: No codes found.
History
No history found for the Domain.