DRS (DISABILITY RATING SCALE)

Definition

DRSa refers to Disability Rating Scale at admission (collected at Form 1)

DRSd refers to Disability Rating Scale at discharge (collected at Form 1)

Disability Rating Scale ratings are to be completed within 3 calendar days for each assessment period. Indicate ratings for all items. Information about the DRS is available from COMBI. See External Links

The DRS at Form 2 (DRS PI) is a standardized questionnaire, and questions should be asked the same way every time with no words changed. If the participant is having trouble understanding the question, restate the question as phrased. If additional clarification is needed, then data collectors can rephrase the question or offer clarification.

Form

[X] Form 1
[X] Form 2

Source

Form 1 - To be completed by clinician or other individual who is trained and certified to code the DRS.
Form 2 - Interview (participant or proxy)

Details

Form 1

If DRS assessments cannot be completed within the 3 calendar day window, they should still reflect the patients’ status within that time period. If this is not possible and the assessments are done out of the 3 calendar day window, code “Unknown”.
Every effort should be made to obtain the DRS assessments, however, if any items can not be assessed, use code “Unknown”. Do not leave blanks.

If a patient has an intermittent acute care stay during inpatient rehabilitation, use the DRS scores from the first rehabilitation admission and the last definitive discharge. In addition, if a patient has an intermittent stay which is longer than 30 days, it is then considered a system discharge and the discharge date from rehabilitation is the system discharge date and the DRS scores should correspond to that date.

Form 2

The DRS for Form II is a standardized questionnaire, and questions should be asked the same way every time with no words changed.

If the answers to specific questions are obvious from answers given prior to the DRS questions, they may be confirmed and skipped.

If the participant is having trouble understanding the question, restate the question as phrased. If additional clarification is needed, then data collectors can rephrase the question or offer clarification.

If in doubt on how to code a response to a DRS item, give the participant the benefit of the doubt. For example, if a participant states that they can give you the correct date and time, but is uncomfortable saying yes because it sometimes takes them up to 30 seconds, give them the credit for being able to do this.

Reference

Rappaport M, Hall KM, Hopkins K, Belleza T, Cope N. (1982). Disability Rating Scale for severe head trauma patients: Coma to community. Arch Phys Med & Rehabil, 63:118-123. rev 8/87. For an abstract of this article, see External Links

Malec JF, Hammond FM, Giacino JT, Whyte J, Wright J. (2012) A Structured Interview to Improve the Reliability and Psychometric Integrity of the Disability Rating Scale. Arch Phys Med & Rehabil,Epub 2012 Sep;93(9):1603-8.

Characteristics

For follow-up, interviewers were originally rating the individual DRS items using the original DRS scoring form. The DRS structured interview was implemented on 10/01/2012.

The DRS-PI provides a structured interview for administration of the Disability Rating Scale (DRS) over the telephone. Except for cases with very severe limitations (eg, minimally conscious), the scoring algorithm for the DRS-PI results in a score that is comparable to the original DRS. However, there are differences between the original DRS and the DRS-PI for cases with very severe limitations. The Motor item of the DRS was not included in the DRS-PI because almost all cases interviewed in the development of the DRS-PI obtained a zero response on this item. In addition, the scoring of the Communication item was altered so that no score above 2 can be obtained. Scoring of the Communication item was altered in this way because very few scores above 2 were obtained in the development sample and collapsing all categories above 2 resulted in better fit of the Communication item with the Rasch model on which the DRS-PI was based. The Eye Opening item of the original DRS was not included in the DRS-PI interview and automatically scored as zero because eye opening should be present in all TBI cases who survive several months or more.

The Expanded DRS-PI adds additional items the DRS-PI and results in a score with a less skewed distribution than either the DRS-PI or the original DRS.

Original DRS. In order to obtain a score similar to the original DRS using the DRS-PI structured interview, an attempt can be made to administer the Motor item over the telephone. This item is only included in the Caregiver version since the Motor score will be zero if the person with TBI is able to respond to the interview questions. The Communication is the same as for the DRS-PI/ Expanded DRS-PI but is scored differently. Scoring algorithms for the DRS-PI, Expanded DRS-PI and Original DRS are at the end of this document.

The development of the DRS-PI and Expanded DRS-PI is described in: Malec JF, Hammond FM, Giacino JT, Whyte J, Wright J. A structured interview to improve the reliability and psychometric integrity of the Disability Rating Scale. Arch Phys Med Rehabil 2012;93:1603-8.

Training

Testing and certification of data collectors of this variable is required. It is available from the COMBI website. See external links for training and testing materials.

COMMUNICATION

Form

[X] Form 1
[X] Form 2

Details

Participant is allowed to look at devices or clocks to determine date or time. If it takes more than a few seconds, then code as “no”.

Participant may simply answer “Yes” without providing date and time. If any doubt, clarify by asking them to tell you the date and time.

Characteristics

On 4/1/2013 codes were changed, and existing cases were re-coded in the database.

Codes at implementation:
2.1:
0 - Consistently
1 - Inconsistently
2 - No
9 - Unknown

2.2:
0 - Speech
1 - Writing or spelling device
2 - Gestures or signals
8 - Not Applicable
9 - Unknown

2.3:
0 - Yes
1 - Yes, but takes more than a few seconds
2 - Sometimes
3 - No
8 - Not Applicable
9 - Unknown

2.4, & 2.5:
0 - No
1 - Yes
8 - Not Applicable
9 - Unknown

Codes on/after 4/1/2013:
2.1:
1 - No
2 - Inconsistently
3 - Consistently
9 - Unknown

2.2:
1 - Speech
2 - Writing Or Spelling Device
3 - Gestures Or Signals
8 - Not Applicable
9 - Unknown

2.3:
1 - No
2 - Sometimes
3 - Yes, But Takes More Than A Few Seconds
4 - Yes
8 - Not Applicable
9 - Unknown

2.4, & 2.5:
1 - No
2 - Yes
8 - Not Applicable
9 - Unknown

Variables

Form Type

Variable

ID

Question

History

Form 1

DRSVerA

477

Communication ability:

1989-10-01 - Variable Added

Form 1

DRSVerD

477

Communication ability:

1989-10-01 - Variable Added

Form 2

drs2_1F

645

2.1 Is [name] able to communicate with you in a way that you and others clearly understand?

2012-10-01 - Variable Added

Form 2

drs2_2F

646

2.2 How do they communicate primarily?

2012-10-01 - Variable Added

Form 2

drs2_3F

647

2.3 Are you [they] able to give your [their] correct name, location, year, month, day, and time of day promptly when asked?

2012-10-01 - Variable Added

Form 2

drs2_4F

648

2.4 Does [name] have only a few words that [s/he] uses over and over or does [s/he] express him/herself only through random answers, shouting or swearing?

2012-10-01 - Variable Added

Form 2

drs2_5F

649

2.5 Does [name] only moan, groan or make other sounds that are not understandable?

2012-10-01 - Variable Added

Codes and Values

ID 477

For Form: Form 1
For Variables: [DRSVerA, DRSVerD]

Code

Description

0

Oriented

1

Confused

2

Inappropriate

3

Incomprehensible

4

None

99

Unknown ( Or assessment not done, or does not reflect patient's status during the 3 calendar day window )

ID 645

For Form: Form 2
For Variables: [drs2_1F]

Code

Description

1

No - Skip to 2.4

2

Inconsistently ( Go to 2.2 )

3

Consistently ( Go to 2.2 )

66

Variable Did Not Exist

99

Unknown

ID 646

For Form: Form 2
For Variables: [drs2_2F]

Code

Description

1

Speech

2

Writing Or Spelling Device

3

Gestures Or Signals

66

Variable Did Not Exist

88

Not Applicable ( Go to 2.2 )

99

Unknown

ID 647

For Form: Form 2
For Variables: [drs2_3F]

Code

Description

1

No - Skip to 3.0

2

Sometimes - Skip to 3.0

3

Yes But Takes More Than A Few Seconds - Skip to 3.0

4

Yes - Skip to 4.0

66

Variable Did Not Exist

88

Not Applicable ( Go to 2.2 )

99

Unknown

ID 648

For Form: Form 2
For Variables: [drs2_4F]

Code

Description

1

No ( Go to 2.5 )

2

Yes - Skip to 4.0

66

Variable Did Not Exist

88

Not Applicable

99

Unknown

ID 649

For Form: Form 2
For Variables: [drs2_5F]

Code

Description

1

No - Skip to 4.0

2

Yes - Skip to 4.0

66

Variable Did Not Exist

88

Not Applicable

99

Unknown

History

Date

Description

2015-10-01

Changed DEFINITION : clarification language from 'Questions 2.1, 2.2, 2.4 and 2.5 are only to be asked only of the SO.' to 'Questions 2.1, 2.2, 2.4 and 2.5 are not to be asked of the participant.'

2022-07-01

Changed SCRIPT : Current TBIMS Telephone Script
Are you [they] able to give the correct date and time within a few seconds of being asked?
to read;
Are you [they] able to give your [their] correct name, location, year, month, day, and time of day promptly when asked?
Note for interviewer:
-Day can be day of week or date of month.
-Time of day can be actual time or able to differentiate morning/afternoon/evening.

EMPLOYABILITY

Form

[X] Form 1
[X] Form 2

Details

The employment section is asking not only about ability to be employed, but also the ability to work as a student or homemaker. When asking an unemployed participant “Can you function with complete independence in work or social situations?”, focus on housework and/or social situations an appropriate way to word the question in circumstances like this would be “Can you function with complete independence in work or social situations? And by work, I’m referring to household activities that you may be responsible for.”

If it’s already clear from completing the FIM that they are unable to complete household tasks due to disability, focus on social situations.

Form 2 - ‘Jobs of your choosing’ may be clarified with ‘jobs you think you would like and be able to do’.

Characteristics

On 4/1/2013 codes were changed, and existing cases were re-coded in the database.

Codes at implementation:
8.1, 8.2, & 8.3:
0 - Always
1 - Most of the Time 2 - Some of the Time
3 - Never
9 - Unknown

8.4, 8.5, 8.6, & 8.7:
0 - Certain or Very Certain I Can
1 - Uncertain
2 - Certain or Very Certain I Cannot
9 - Unknown

Codes on/after 4/1/2013:
8.1, 8.2, & 8.3: 1 - Never
2 - Some of the Time
3 - Most of the Time
4 - Always
9 - Unknown

8.4, 8.5, 8.6, & 8.7:
1 - Certain Or Very Certain I Cannot
2 - Uncertain
3 - Certain Or Very Certain I Can
9 - Unknown

Variables

Form Type

Variable

ID

Question

History

Form 1

DRSEmpA

470

Employability:

1989-10-01 - Variable Added

Form 1

DRSEmpD

470

Employability:

1989-10-01 - Variable Added

Form 2

drs8_1F

653

8.1 Can you function with complete independence in work or social situations?

2012-10-01 - Variable Added

Form 2

drs8_2F

653

8.2 Can you understand, remember, and follow directions?

2012-10-01 - Variable Added

Form 2

drs8_3F

653

8.3 Can you keep track of time, schedules and appointments?

2012-10-01 - Variable Added

Form 2

drs8_4F

657

8.4 How certain are you that you can perform in a wide variety of jobs of your choosing or manage a home independently or participate in school full-time?

2012-10-01 - Variable Added

Form 2

drs8_5F

658

8.5 How certain are you that you can be successful at work, school or in home management with some reduction in the work load or with other accommodations due to disabilities?

2012-10-01 - Variable Added

Form 2

drs8_6F

659

8.6 How certain are you that you can be successful at work, school or in home management but with limited choices in jobs or school courses due to disabilities?

2012-10-01 - Variable Added

Form 2

drs8_7F

660

8.7 How certain are you that you can be able to work at home or in a special setting like a sheltered workshop in which the work is very routine and there is very frequent supervision and support?

2012-10-01 - Variable Added

Codes and Values

ID 470

For Form: Form 1
For Variables: [DRSEmpA, DRSEmpD]

Code

Description

0.0

Not Restricted

0.5

Between Not Restricted and Selective Jobs, Competitive ( Code no longer used )

1.0

Selected Jobs, Competitive

1.5

Between Selected Jobs and Sheltered Workshop ( Code no longer used )

2.0

Sheltered Workshop, Non-Competitive

2.5

Between Sheltered Workshop and Not Employable ( Code no longer used )

3.0

Not Employable

99.9

Unknown ( Or assessment not done, or does not reflect patient's status during the 3 calendar day window )

ID 653

For Form: Form 2
For Variables: [drs8_1F, drs8_2F, drs8_3F]

Code

Description

1

Never

2

Some Of The Time

3

Most Of The Time

4

Always

66

Variable Did Not Exist

99

Unknown

ID 657

For Form: Form 2
For Variables: [drs8_4F]

Code

Description

1

Certain Or Very Certain I Cannot ( Go to 8.5. )

2

Uncertain ( Go to 8.5. )

3

Certain Or Very Certain I Can - END

66

Variable Did Not Exist

99

Unknown

ID 658

For Form: Form 2
For Variables: [drs8_5F]

Code

Description

1

Certain Or Very Certain I Cannot ( Go to 8.6. )

2

Uncertain ( Go to 8.6. )

3

Certain Or Very Certain I Can - END

66

Variable Did Not Exist

88

Not Applicable

99

Unknown

ID 659

For Form: Form 2
For Variables: [drs8_6F]

Code

Description

1

Certain Or Very Certain I Cannot ( Go to 8.7. )

2

Uncertain ( Go to 8.7. )

3

Certain Or Very Certain I Can - END

66

Variable Did Not Exist

88

Not Applicable

99

Unknown

ID 660

For Form: Form 2
For Variables: [drs8_7F]

Code

Description

1

Certain Or Very Certain I Cannot - END

2

Uncertain - END

3

Certain Or Very Certain I Can - END

66

Variable Did Not Exist

88

Not Applicable - END

99

Unknown

History

Date

Description

2016-04-01

Added Note: Jobs of your choosing may be clarified with 'jobs you think you would like and be able to do'.

EYE OPENING

Form

[X] Form 1
[ ] Form 2

Variables

Form Type

Variable

ID

Question

History

Form 1

DRSEyeA

471

Eye opening:

1989-10-01 - Variable Added

Form 1

DRSEyeD

471

Eye opening:

1989-10-01 - Variable Added

Codes and Values

ID 471

For Form: Form 1
For Variables: [DRSEyeA, DRSEyeD]

Code

Description

0

Spontaneous

1

To Speech

2

To Pain

3

None

99

Unknown ( Or assessment not done, or does not reflect patient's status during the 3 calendar day window )

History

No history found for the Domain.

FEEDING

Form

[X] Form 1
[X] Form 2

Characteristics

On 4/1/2013 codes were changed, and existing cases were re-coded in the database.

Codes at implementation:
4.1:
0 - Yes
1 - No
9 - Unknown

4.2, & 4.3:
0 - Always
1 - Most of the Time
2 - Some of the Time
3 - Never
9 - Unknown

Codes on/after 4/1/2013:
4.1:
1 - No
2 - Yes
9 - Unknown

4.2, & 4.3:
1 - Never
2 - Some Of The Time
3 - Most Of The Time
4 - Always
9 - Unknown

Variables

Form Type

Variable

ID

Question

History

Form 1

DRSFeedA

472

Feeding:

1989-10-01 - Variable Added

Form 1

DRSFeedD

472

Feeding:

1989-10-01 - Variable Added

Form 2

drs4_1F

652

4.1 Can you feed yourself independently or manage tube feedings appropriately without help or reminders?

2012-10-01 - Variable Added

Form 2

drs4_2F

653

4.2 Do you understand what eating or feeding utensils or equipment are for and how they should be used?

2012-10-01 - Variable Added

Form 2

drs4_3F

653

4.3 Do you  know when meal or feeding times are?

2012-10-01 - Variable Added

Codes and Values

ID 472

For Form: Form 1
For Variables: [DRSFeedA, DRSFeedD]

Code

Description

0.0

Complete

0.5

Between Complete and Partial ( Code no longer used )

1.0

Partial

1.5

Between Partial and Minimal ( Code no longer used )

2.0

Minimal

2.5

Between Minimal and None ( Code no longer used )

3.0

None

99.9

Unknown ( Or assessment not done, or does not reflect patient's status during the 3 calendar day window )

ID 652

For Form: Form 2
For Variables: [drs4_1F]

Code

Description

1

No ( Go to 4.2 )

2

Yes - Mark 4 = Always in 4.2. and 4.3., then skip to 5.0.

66

Variable Did Not Exist

99

Unknown

ID 653

For Form: Form 2
For Variables: [drs4_2F, drs4_3F]

Code

Description

1

Never

2

Some Of The Time

3

Most Of The Time

4

Always

66

Variable Did Not Exist

99

Unknown

History

No history found for the Domain.

FUNCTIONING

Form

[X] Form 1
[X] Form 2

Details

These questions evaluate if the person with TBI is able to live as s/he wishes and what kind of assistance s/he needs from others. Physical difficulties are considered in the scoring.

Form 2 - ‘Thinking abilities’ may be clarified with ‘Thinking abilities include things such as concentrating, understanding, and remembering.’

Characteristics

On 4/1/2013 codes were changed, and existing cases were re-coded in the database.

Codes at implementation:
7.1:
0 - Yes
1 - No
9 - Unknown

7.2, 7.6a, 7.6b, & 7.6c:
0 - No
1 - Yes
9 - Unknown

7.3, 7.4, & 7.5:
0 - Never
1 - Some of the Time
2 - Most of the Time
3 - Always
9 - Unknown

Codes on/after 4/1/2013:
7.1, 7.2, 7.6a, 7.6b, & 7.6c:
1 - No
2 - Yes
9 - Unknown

7.3, 7.4, & 7.5:
1 - Never
2 - Some Of The Time
3 - Most Of The Time
4 - Always
9 - Unknown

Variables

Form Type

Variable

ID

Question

History

Form 1

DRSFuncA

473

Level of functioning:

1989-10-01 - Variable Added

Form 1

DRSFuncD

473

Level of functioning:

1989-10-01 - Variable Added

Form 2

drs7_1F

656

7.1 Do you function completely independently?  That is, you do not require any physical assistance, supervision, equipment, devices, or reminders for cognitive, social, behavioral, emotional, and physical function?

2012-10-01 - Variable Added

Form 2

drs7_2F

656

7.2 Do you REQUIRE special aids or equipment such as a brace, walker, wheelchair, memory notebook, day planner, verbal reminders, prompts, cues, or alarm watch because of a disability?

2012-10-01 - Variable Added

Form 2

drs7_3F

653

7.3 Do you require PHYSICAL assistance from another person to meet daily needs?

2012-10-01 - Variable Added

Form 2

drs7_4F

653

7.4 Do you require assistance from another person in tasks that require THINKING ABILITIES?

2012-10-01 - Variable Added

Form 2

drs7_5F

653

7.5 Do you require assistance from another person to manage EMOTIONS AND BEHAVIOR?

2012-10-01 - Variable Added

Form 2

drs7_6aF

656

7.6a Do you take care of some of your needs but also need a helper who is always close by?

2012-10-01 - Variable Added

Form 2

drs7_6bF

656

7.6b Do you need help with all major activities and the assistance of another person all the time?

2012-10-01 - Variable Added

Form 2

drs7_6cF

656

7.6c Do you need 24-hour care and are not able to help with your own care at all?

2012-10-01 - Variable Added

Codes and Values

ID 473

For Form: Form 1
For Variables: [DRSFuncA, DRSFuncD]

Code

Description

0.0

Completely Independent

0.5

Between Completely Independent and Independent in Special Environment ( Code no longer used )

1.0

Independent in Special Environment

1.5

Between Independent in Special Environment and Mildly Dependent ( Code no longer used )

2.0

Mildly Dependent: Limited assistance ( Non-resident helper )

2.5

Between Mildly Dependent and Moderately Dependent ( Code no longer used )

3.0

Moderately Dependent: Moderate assistance ( Person in home )

3.5

Between Moderately Dependent and Markedly Dependent ( Code no longer used )

4.0

Markedly Dependent: Assist all major activities, all times

4.5

Between Markedly Dependent and Totally Dependent ( Code no longer used )

5.0

Totally Dependent: 24 hour nursing care

99.9

Unknown ( Or assessment not done, or does not reflect patient's status during the 3 calendar day window )

ID 653

For Form: Form 2
For Variables: [drs7_3F, drs7_4F, drs7_5F]

Code

Description

1

Never

2

Some Of The Time

3

Most Of The Time

4

Always

66

Variable Did Not Exist

99

Unknown

ID 656

For Form: Form 2
For Variables: [drs7_1F, drs7_2F, drs7_6aF, drs7_6bF, drs7_6cF]

Code

Description

1

No

2

Yes

66

Variable Did Not Exist

99

Unknown

History

Date

Description

2014-04-01

Changed DEFINITION : eliminated "stop rule" associated with item 7.2.

GROOMING

Form

[X] Form 1
[X] Form 2

Characteristics

On 4/1/2013 codes were changed, and existing cases were re-coded in the database.

Codes at implementation: 6.1:
0 - Yes
1 - No
9 - Unknown

6.2, 6.3, & 6.4:
0 - Always
1 - Most of the Time
2 - Some of the Time
3 - Never
9 - Unknown

Codes on/after 4/1/2013: 6.1:
1 - No
2 - Yes
9 - Unknown

6.2, 6.3, & 6.4:
1 - Never
2 - Some Of The Time
3 - Most Of The Time
4 - Always
9 - Unknown

Variables

Form Type

Variable

ID

Question

History

Form 1

DRSGroomA

474

Grooming:

1989-10-01 - Variable Added

Form 1

DRSGroomD

474

Grooming:

1989-10-01 - Variable Added

Form 2

drs6_1F

655

6.1 Can you dress and groom yourself independently and appropriately or direct someone else in these activities without help or reminders?

2012-10-01 - Variable Added

Form 2

drs6_2F

653

6.2 Do you know how to bathe and wash?

2012-10-01 - Variable Added

Form 2

drs6_3F

653

6.3 Do you understand how to get dressed?

2012-10-01 - Variable Added

Form 2

drs6_4F

653

6.4 Can you start and finish these grooming activities without prompting?

2012-10-01 - Variable Added

Codes and Values

ID 474

For Form: Form 1
For Variables: [DRSGroomA, DRSGroomD]

Code

Description

0.0

Complete

0.5

Between Complete and Partial ( Code no longer used )

1.0

Partial

1.5

Between Partial and Minimal ( Code no longer used )

2.0

Minimal

2.5

Between Minimal and None ( Code no longer used )

3.0

None

99.9

Unknown ( Or assessment not done, or does not reflect patient's status during the 3 calendar day window )

ID 653

For Form: Form 2
For Variables: [drs6_2F, drs6_3F, drs6_4F]

Code

Description

1

Never

2

Some Of The Time

3

Most Of The Time

4

Always

66

Variable Did Not Exist

99

Unknown

ID 655

For Form: Form 2
For Variables: [drs6_1F]

Code

Description

1

No ( Go to 6.2 )

2

Yes - Mark 4 = Always in 6.2. and 6.3., then skip to 7.0

66

Variable Did Not Exist

99

Unknown

History

No history found for the Domain.

MOTOR

Form

[X] Form 1
[X] Form 2

Variables

Form Type

Variable

ID

Question

History

Form 1

DRSMotA

475

Motor response:

1997-01-01 - Variable Added

Form 1

DRSMotD

475

Motor response:

1997-01-01 - Variable Added

Form 2

drs3_1F

650

3.1 Are you [they] able to obey commands? For example, move finger, look up, close eyes, stick out tongue.

2015-01-15 - Variable Added

Form 2

drs3_2F

651

3.2 If you pinch an arm/leg hard enough to hurt, how does [name] respond:

2015-01-15 - Variable Added

Codes and Values

ID 475

For Form: Form 1
For Variables: [DRSMotA, DRSMotD]

Code

Description

0

Obeying

1

Localizing

2

Withdrawing

3

Flexing

4

Extending

5

None

99

Unknown ( Or assessment not done, or does not reflect patient's status during the 3 calendar day window )

ID 650

For Form: Form 2
For Variables: [drs3_1F]

Code

Description

1

No

2

Inconsistently

3

Yes

66

VariableDid Not Exist

99

Unknown

ID 651

For Form: Form 2
For Variables: [drs3_2F]

Code

Description

1

Localization

2

Withdrawal

3

Flexion

4

Extension

5

No Response

66

VariableDid Not Exist

88

Not Applicable

99

Unknown

History

No history found for the Domain.

TOILETING

Form

[X] Form 1
[X] Form 2

Characteristics

On 4/1/2013 codes were changed, and existing cases were re-coded in the database.

Codes at implementation:
5.1:
0 - Yes
1 - No
9 - Unknown

5.2, & 5.3
0 - Always
1 - Most of the Time
2 - Some of the Time
3 - Never
9 - Unknown

Codes on/after 4/1/2013:
5.1:
1 - No
2 - Yes
9 - Unknown

5.2, & 5.3
1 - Never
2 - Some Of The Time
3 - Most Of The Time
4 - Always
9 - Unknown

Variables

Form Type

Variable

ID

Question

History

Form 1

DRSToiletA

476

Toileting:

1989-10-01 - Variable Added

Form 1

DRSToiletD

476

Toileting:

1989-10-01 - Variable Added

Form 2

drs5_1F

654

5.1 Can you use the toilet or manage your bowel and bladder routine independently and appropriately without help or reminders?

2012-10-01 - Variable Added

Form 2

drs5_2F

653

5.2 Do you understand how to manage your clothing or special equipment when toileting or in bowel and bladder management?

2012-10-01 - Variable Added

Form 2

drs5_3F

653

5.3 Do you know when to use the toilet or to conduct bowel and bladder management?

2012-10-01 - Variable Added

Codes and Values

ID 476

For Form: Form 1
For Variables: [DRSToiletA, DRSToiletD]

Code

Description

0.0

Complete

0.5

Between Complete and Partial ( Code no longer used )

1.0

Partial

1.5

Between Partial and Minimal ( Code no longer used )

2.0

Minimal

2.5

Between Minimal and None ( Code no longer used )

3.0

None

99.9

Unknown ( Or assessment not done, or does not reflect patient's status during the 3 calendar day window )

ID 653

For Form: Form 2
For Variables: [drs5_2F, drs5_3F]

Code

Description

1

Never

2

Some Of The Time

3

Most Of The Time

4

Always

66

Variable Did Not Exist

99

Unknown

ID 654

For Form: Form 2
For Variables: [drs5_1F]

Code

Description

1

No ( Go to 5.2 )

2

Yes - Mark 4 = Always in 5.2. and 5.3., then skip to 6.0

66

Variable Did Not Exist

99

Unknown

History

No history found for the Domain.

DRS - CALCULATED

Definition

Computed DRS - Sum of all admission DRS Scores. If any one of the items are unknown, the total score becomes 99.

To account for the half point variables both DRSaLow and DRSaHigh are calculated which rounds the “.5” accordingly Calculates the Disability Rating Score.

DRS Interview at Follow-Up was created as a standardized post-acute interview (PI) that did not include the DRS motor item and that altered the scoring of the communication item. The eye-opening item of the original DRS was not included in PI and was scored as zero.

Details

Total score is calculated using a computer program.

The DRS-PI provides a structured interview for administration of the Disability Rating Scale (DRS) over the telephone. Except for cases with very severe limitations (eg, minimally conscious), the scoring algorithm for the DRS-PI results in a score that is comparable to the original DRS. However, there are differences between the original DRS and the DRS-PI for cases with very severe limitations. The Motor item of the DRS was not included in the DRS-PI because almost all cases interviewed in the development of the DRS-PI obtained a zero response on this item. In addition, the scoring of the Communication item was altered so that no score above 2 can be obtained. Scoring of the Communication item was altered in this way because very few scores above 2 were obtained in the development sample and collapsing all categories above 2 resulted in better fit of the Communication item with the Rasch model on which the DRS-PI was based. The Eye Opening item of the original DRS was not included in the DRS-PI interview and automatically scored as zero because eye opening should be present in all TBI cases who survive several months or more.

The Expanded DRS-PI adds additional items the DRS-PI and results in a score with a less skewed distribution than either the DRS-PI or the original DRS.

Original DRS. In order to obtain a score similar to the original DRS using the DRS-PI structured interview, an attempt can be made to administer the Motor item over the telephone. This item is only included in the Caregiver version since the Motor score will be zero if the person with TBI is able to respond to the interview questions. The Communication is the same as for the DRS-PI/ Expanded DRS-PI but is scored differently. Scoring algorithms for the DRS-PI, Expanded DRS-PI and Original DRS are at the end of this document.

The development of the DRS-PI and Expanded DRS-PI is described in: Malec JF, Hammond FM, Giacino JT, Whyte J, Wright J. A structured interview to improve the reliability and psychometric integrity of the Disability Rating Scale. Arch Phys Med Rehabil 2012;93:1603-8.

Variables

Form Type

Variable

ID

Question

History

Form 1

DRSa

464

Disability Rating Scale On Admission

1989-10-01 - Variable Added

Form 1

DRSaHigh

465

Disability Rating Scale On Admission Round High

1989-10-01 - Variable Added

Form 1

DRSaLow

466

Disability Rating Scale On Admission Round Low

1989-10-01 - Variable Added

Form 1

DRSd

467

Disability Rating Scale At Discharge

1989-10-01 - Variable Added

Form 1

DRSdHigh

468

Disability Rating Scale At Discharge Round High

1989-10-01 - Variable Added

Form 1

DRSdLow

469

Disability Rating Scale At Discharge Round Low

1989-10-01 - Variable Added

Form 2

DRS_PIF

643

Disability Rating Scale Interview Follow-up

2012-10-01 - Variable Added

Form 2

DRS_PI_ORIGF

644

Disability Rating Scale Interview Follow-up

2012-10-01 - Variable Added

Form 2

DRS_PIEmpf

3664

Disability Rating Scale Interview Follow-up

2012-10-01 - Variable Added

Form 2

DRS_PIEyeF

3665

Disability Rating Scale Interview Follow-up

2012-10-01 - Variable Added

Form 2

DRS_PIFeedF

3666

Disability Rating Scale Interview Follow-up

2012-10-01 - Variable Added

Form 2

DRS_PIFunctF

3667

Disability Rating Scale Interview Follow-up

2012-10-01 - Variable Added

Form 2

DRS_PIGroomF

3668

Disability Rating Scale Interview Follow-up

2012-10-01 - Variable Added

Form 2

DRS_PIMotF

3669

Disability Rating Scale Interview Follow-up

2012-10-01 - Variable Added

Form 2

DRS_PIToiletF

3670

Disability Rating Scale Interview Follow-up

2012-10-01 - Variable Added

Form 2

DRS_PIVerF

3671

Disability Rating Scale Interview Follow-up

2012-10-01 - Variable Added

Form 2

DRSF

661

Disability Rating Scale Follow-up

1989-10-01 - Variable Added

Form 2

DRSHighF

662

Disability Rating Scale Followup Round Up

1989-10-01 - Variable Added

Form 2

DRSLowF

663

Disability Rating Scale Followup Round Down

1989-10-01 - Variable Added

Form 2

CombinedDRSF

CombinedDRS is a variable that creates a single value based on DRSF, DRS_PI, and DRS_PI_ORIG values. This value uses DRS_PI_ORIG if it exists; if not, then it uses DRS_PI. If both are missing, then it uses DRSF.

Form 2

CombinedDRSTypeF

CombinedDRSType indicates which of the DRS methods CombinedDRS used for its value.

Codes and Values

ID 464

For Form: Form 1
For Variables: [DRSa]

Code

Description

999

Unknown

ID 465

For Form: Form 1
For Variables: [DRSaHigh]

Code

Description

999

Unknown

ID 466

For Form: Form 1
For Variables: [DRSaLow]

Code

Description

999

Unknown

ID 467

For Form: Form 1
For Variables: [DRSd]

Code

Description

999

Unknown

ID 468

For Form: Form 1
For Variables: [DRSdHigh]

Code

Description

999

Unknown

ID 469

For Form: Form 1
For Variables: [DRSdLow]

Code

Description

999

Unknown

ID 3664

For Form: Form 2
For Variables: [DRS_PIEmpf]

Code

Description

0

Not Restricted

1

Selected Jobs: Competitive

2

Sheltered Workshop: Non-competitive

3

Not Employable

ID 3665

For Form: Form 2
For Variables: [DRS_PIEyeF]

Code

Description

0

Spontaneous

1

To Speech

2

To Pain

3

None

99

Unknown

ID 3666

For Form: Form 2
For Variables: [DRS_PIFeedF]

Code

Description

0

Complete

1

Partial

2

Minimal

3

None

ID 3667

For Form: Form 2
For Variables: [DRS_PIFunctF]

Code

Description

0

Completely Independent

1

Independent in Special Environment

2

Mildly Dependent: Limited assistance

3

Moderately Dependent: Moderate assistance

4

Markedly Dependent: Assist all major activities, all times

5

Totally Dependent: 24 hour nursing care

99

Unknown

ID 3668

For Form: Form 2
For Variables: [DRS_PIGroomF]

Code

Description

0

Complete

1

Partial

2

Minimal

3

None

99

Unknown

ID 3669

For Form: Form 2
For Variables: [DRS_PIMotF]

Code

Description

0

Obeying

1

Localizing

2

Withdrawing

3

Flexing

4

Extending

5

None

99

Unknown

ID 3670

For Form: Form 2
For Variables: [DRS_PIToiletF]

Code

Description

0

Complete

1

Partial

2

Minimal

3

None

99

Unknown

ID 3671

For Form: Form 2
For Variables: [DRS_PIVerF]

Code

Description

0

Oriented

1

Confused

2

Inappropriate

3

Incomprehensible

4

None

99

Unknown

ID 643

For Form: Form 2
For Variables: [DRS_PIF]

Code

Description

999

Unknown

ID 644

For Form: Form 2
For Variables: [DRS_PI_ORIGF]

Code

Description

999

Unknown

ID 661

For Form: Form 2
For Variables: [DRSF]

Code

Description

999

Unknown

ID 662

For Form: Form 2
For Variables: [DRSHighF]

Code

Description

999

Unknown

ID 663

For Form: Form 2
For Variables: [DRSLowF]

Code

Description

999

Unknown

ID NA: No codes found.

History

No history found for the Domain.