How to obtain a dataset from the TBIMS
The National Data and Statistical Center has a standard operating procedures (SOP) for obtaining a copy of the dataset.
All researchers interested in getting a copy of the dataset should familiarize themselves with the content of the database.
Information about the individual variables that are currently in the database can be found on this web site under the heading
"Syllabus". Additional information regarding the inclusion and exclusion criteria for who's information is included in the
database can be found in the following SOP.
There are two types of requests for the database, internal and external. Internal requests are made by the currently funded TBIMS
Centers or the TBIMS Longitudinal Follow-up Centers. External request are made from persons who are not affiliated with the TBIMS.
Each type of request needs to follow the relevant SOP below, and complete the relevant Form below in order to access the data.
Internal
External
External requests are made from persons who are not affiliated with the TBIMS
The differences between the Public Use Database and the previously-described External Uuse Database are:
- The External Database requires a brief proposal, has an approval process, and encourages collaboration with TBIMS researchers
- The Public Use Database includes no HIPAA-defined identifiers, and there is an embargo on the usage of the most recent two years of data
Interactive Tools
Links to interactive tools used to describe the database at an individual level using significant baseline covariates are provided below. Development and proper usage of these tools may be obtained by referencing their corresponding articles where respective citations are provided below.
Medical Conditions and Functional Outcome / Life Satisfaction 10 IGC Trajectory Tool
JF Malec, JM Ketchum, FM Hammond, JD Corrigan, K Dams-O’Connor, T Hart, TA Novack, MN Dahdah, GG Whiteneck, J Bogner (2019). Longitudinal Effects of Medical Comorbidities on Functional Outcome and Life Satisfaction after Traumatic Brain Injury: An Individual Growth Curve Analysis of NIDILIRR Traumatic Brain Injury Model System Data. Journal of Head Trauma and Rehabilitation (Epub Ahead of print February 27, 2019). PMID: 30829813. DOI: 10.1097/HTR.0000000000000459.
Functional Outcomes IGC Trajectory Tool
K Dams-O’Connor, JM Ketchum, JP Cuthbert, J Corrigan, FM Hammond, J Haarbauer-Krupa, RG Kowalski, AC Miller. (2019) Functional Outcome Trajectories following Inpatient Rehabilitation for TBI in the United States: A NIDILRR TBIMS and CDC Interagency Collaboration. Journal of Head Trauma and Rehabilitation (Epub Ahead of print April 25, 2019). PMID: 31033744; DOI: 10.1097/ HTR.0000000000000484.
GOSE/DRS Death
Dams-O’Connor, K., Pretz, C., Billah, T., Hammond, F. M., & Harrison-Felix, C. (2015). Global outcome trajectories after TBI among survivors and nonsurvivors: a National Institute on Disability and Rehabilitation Research Traumatic Brain Injury Model Systems study. The Journal of head trauma rehabilitation, 30(4), E1.
DRS Interactive Tool Link
Pretz CR, Malec J, Hammond F, (2013) Longitudinal Description of the Disability Rating Scale for Individuals in the National Institute on Disability and Rehabilitation Research Traumatic Brain Injury Model Systems National Database. Archives of Physical Medicine and Rehabilitation, Vol. 94, Issue 12, p2478–2485
GOSE Interactive Tool Link
Pretz CR & Dams-O’Connor K. (2013) Longitudinal Description of the Glasgow Outcome Scale-Extended for Individuals in the Traumatic Brain Injury Model Systems National Database: A National Institute on Disability and Rehabilitation Research Traumatic Brain Injury Model Systems Study. Archives of Physical Medicine and Rehabilitation, Vol. 94, Issue 12, p2486–2493
Employment Interactive Tool Link
Cuthbert, J. P., Pretz, C. R., Bushnik, T., Fraser, R. T., Hart, T., Kolakowsky-Hayner, S. A., ... & Sherer, M. (2015). Ten-year employment patterns of working age individuals after moderate to severe traumatic brain injury: A national institute on disability and rehabilitation research traumatic brain injury model systems study. Archives of physical medicine and rehabilitation, 96(12), 2128-2136.