How to obtain a dataset from the TBIMS
The Model Systems Knowledege and Translation Center has published a
describing the process for using the database
The National Data and Statistical Center has standard operating procedures (SOPs) for obtaining a copy of the dataset.
All researchers interested in getting a copy of the dataset should familiarize themselves with the content of the database.
Information about the individual variables that are currently in the database can be found on this web site under the heading
"Syllabus". Additional information regarding the inclusion and exclusion criteria for who's information is included in the
database can be found in the following SOP.
There are two types of requests for the database, internal and external. Internal requests are made by the currently funded TBIMS
Centers or the TBIMS Longitudinal Follow-up Centers. External request are made from persons who are not affiliated with the TBIMS.
Each type of request needs to follow the relevant SOP below, and complete the relevant Form below in order to access the data.
Links to interactive tools used to describe the database at an individual level using significant baseline covariates are provided below. Development and proper usage of these tools may be obtained by referencing their corresponding articles where respective citations are provided below.
Dams-O’Connor K, Pretz CR, Harrison-Felix C, Hammond F (2014) Global outcome trajectories after TBI among survivors and non-survivors: A National Institute on Disability and Rehabilitation Research Traumatic Brain Injury Model Systems. IN PRESS, Journal of Head Trauma Research
DRS Interactive Tool Link
Pretz CR, Malec J, Hammond F, (2013) Longitudinal Description of the Disability Rating Scale for Individuals in the National Institute on Disability and Rehabilitation Research Traumatic Brain Injury Model Systems National Database. Archives of Physical Medicine and Rehabilitation, Vol. 94, Issue 12, p2478–2485
GOSE Interactive Tool Link
Pretz CR & Dams-O’Connor K. (2013) Longitudinal Description of the Glasgow Outcome Scale-Extended for Individuals in the Traumatic Brain Injury Model Systems National Database: A National Institute on Disability and Rehabilitation Research Traumatic Brain Injury Model Systems Study. Archives of Physical Medicine and Rehabilitation, Vol. 94, Issue 12, p2486–2493
Employment Interactive Tool Link
Cuthbert JP, Pretz CR, Bushnik T, Fraser RT, Hart T, Kolakowsky-Hayner SA, Malec JF, O’Neil-Pirozzi TM, Sherer M. Ten year employment patterns of working age individuals after moderate to severe traumatic brain injury: An NIDRR traumatic brain injury model systems study. Archives of Physical Medicine and Rehabilitation. In Press. (pmid 26278493).