Researchers


Information regarding the model systems ndsc for researchers.

How to obtain a dataset from the TBIMS

The Model Systems Knowledege and Translation Center has published a Fact Sheet describing the process for using the database

The National Data and Statistical Center has standard operating procedures (SOPs) for obtaining a copy of the dataset. All researchers interested in getting a copy of the dataset should familiarize themselves with the content of the database. Information about the individual variables that are currently in the database can be found on this web site under the heading "Syllabus". Additional information regarding the inclusion and exclusion criteria for who's information is included in the database can be found in the following SOP.


There are two types of requests for the database, internal and external. Internal requests are made by the currently funded TBIMS Centers or the TBIMS Longitudinal Follow-up Centers. External request are made from persons who are not affiliated with the TBIMS. Each type of request needs to follow the relevant SOP below, and complete the relevant Form below in order to access the data.


Interactive Tools

Links to interactive tools used to describe the database at an individual level using significant baseline covariates are provided below. Development and proper usage of these tools may be obtained by referencing their corresponding articles where respective citations are provided below.


GOSE/DRS Death

Dams-O’Connor, K., Pretz, C., Billah, T., Hammond, F. M., & Harrison-Felix, C. (2015). Global outcome trajectories after TBI among survivors and nonsurvivors: a National Institute on Disability and Rehabilitation Research Traumatic Brain Injury Model Systems study. The Journal of head trauma rehabilitation, 30(4), E1.


DRS Interactive Tool Link

Pretz CR, Malec J, Hammond F, (2013) Longitudinal Description of the Disability Rating Scale for Individuals in the National Institute on Disability and Rehabilitation Research Traumatic Brain Injury Model Systems National Database. Archives of Physical Medicine and Rehabilitation, Vol. 94, Issue 12, p2478–2485


GOSE Interactive Tool Link

Pretz CR & Dams-O’Connor K. (2013) Longitudinal Description of the Glasgow Outcome Scale-Extended for Individuals in the Traumatic Brain Injury Model Systems National Database: A National Institute on Disability and Rehabilitation Research Traumatic Brain Injury Model Systems Study. Archives of Physical Medicine and Rehabilitation, Vol. 94, Issue 12, p2486–2493


Employment Interactive Tool Link

Cuthbert, J. P., Pretz, C. R., Bushnik, T., Fraser, R. T., Hart, T., Kolakowsky-Hayner, S. A., ... & Sherer, M. (2015). Ten-year employment patterns of working age individuals after moderate to severe traumatic brain injury: A national institute on disability and rehabilitation research traumatic brain injury model systems study. Archives of physical medicine and rehabilitation, 96(12), 2128-2136.


Public Access

You can obtain a free public version of the dataset by contacting us at tbimsdata@craighospital.org. This dataset is comprised of data that has been collected up to 2 years prior to the last quarter.

Responsible Use of Data

Those downloading data or analyzing them online are expected to comply with standards of responsible use. Before gaining access to data, users will be asked to read a Responsible Use Statement that says the following:

  • The datasets are to be used solely for statistical analysis and reporting aggregated information.
  • The confidentiality of research participants is to be guarded in all ways.
  • Anything that can potentially breach participants' confidentiality is to be reported promptly to the TBI NDSC.
  • The data are not to be redistributed or sold to others without the written agreement of the TBI NDSC.
  • The user will inform the TBI NSDC of the use of the data in books, articles, and other forms of publication.