Rusk Rehabilitation is the #1 rehabilitation facility servicing New York City and the tri-state area (New York, New Jersey, and Connecticut) and is ranked #8 in the United States as ranked by U.S. News and World Report, providing the RRTBIMS with an excellent environment to maximizes our goals of generating new knowledge and scientific evidence to improve outcomes for all persons with TBI through the development of innovative interventions, clinical assessment and outcomes tools, and expanded service delivery options.
The RRTBIMS is a collaborative endeavor involving Rusk Rehabilitation, NYU Langone Medical Center (NYULMC), Bellevue Hospital Center (Bellevue), several trauma and medical centers throughout New York City, and a nationally renowned rehabilitation outcomes research center at the University of Michigan.
We are proposing one innovative research study that uses a two phase approach to examine cultural disparities in rehabilitation healthcare among patients with TBI. The first phase is a descriptive study where we will collect data on culturally diverse patients with TBI from both Bellevue and Rusk Rehabilitation, who have been admitted into acute inpatient rehabilitation. Data will be collected over the 5 year grant cycle and will examine the patients’ race/ethnicity, acculturation, family support, trust in health care providers, and health and language literacy as related to retention in healthcare after discharge from acute inpatient rehabilitation. The second phase of the study will involve the development of the Multimedia Multicultural Educational Program for TBI (MMEPT) to provide patients with culturally-accessible knowledge about their TBI and the rehabilitation process to facilitate improved outcomes, particularly return for follow-up outpatient care. This study was designed to be responsive to NIDRR’s foci of Disability Demographics, Health and Function, and Participation and Community Living.
The second research study that we are proposing assesses the responsiveness and sensitivity of the Traumatic Brain Injury Quality of Life Measurement System (TBI-QOL) computerized adaptive tests (CATs). The TBI-QOL is a new comprehensive patient reported outcome system that was developed as a collaborative project within the previous cycle of the TBIMS program. It was developed in a coordinated effort with large federal initiatives from NIH (NIH Common Fund: NIH Patient Reported Outcomes Measurement Information System (PROMIS) and NINDS: Neuro-QOL) and the Department of Veterans Affairs (Rehabilitation Research & Development Program), and it is recommended as a supplemental/emerging Common Data Element (CDE) promoted by this interagency initiative. As such, the proposed study will contribute to bridge the gap between federal agencies, cited as a desired goal in the 2005-2009 NIDRR Long Range Plan.
Both research studies will test innovative approaches to treat and assess outcomes of individuals with TBI.
Based upon our census over the past 5 years, the RRTBIMS will be able to enroll 50 participants in the TBIMS National Database and meet all of the benchmarks and targets that have been established for this data collection effort.
Finally, our plan of Dissemination and Knowledge Translation builds upon our extensive past experience with the TBIMS program. Drs. Bushnik, Ashman, Flanagan, Hibbard, and Tulsky are well-recognized past participants of the TBIMS program. Ms. Ginsberg and Ms. Kisala are experienced research coordinators within the TBIMS program. With this wealth of experience, the RRTBIMS will be a valued contributor to the 2012-2017 TBIMS grant cycle.