New York Traumatic Brain Injury Model System

The New York Traumatic Brain Injury Model System (NY-TBIMS) at Mount Sinai Hospital provides comprehensive interdisciplinary services for individuals with traumatic brain injury (TBI) and conducts site-specific and collaborative research with the goal of improving the health, functioning, community living, and participation across the continuum—from injury to community integration for people with TBI. Project objectives are to: (1) enroll a minimum of 35 individuals per year into the TBIMS National Database and continue following those already enrolled; (2) conduct a site-specific project utilizing the previously developed Online EmReg intervention to improve post-TBI emotional deregulation in individuals with TBI; and (3) conduct a multi-center module project to examine life course epidemiology, geospatial indicators of social determinants of health, and outcome models to determine actionable targets for policy change and individualized care delivery of individuals with TBI. The site-specific randomized controlled trial (RCT), Community-Based Implementation of an Emotion Regulation Intervention for Individuals with TBI, utilizes implementation science methods to compare two implementation strategies designed to train community-based clinicians to provide the Online EmReg intervention to individuals with TBI. Also embedded in this RCT is an investigation of the effectiveness of Online EmReg when delivered outside the context of a clinical trial. The results of this study further inform best practices for translating evidence-based rehabilitation interventions into the community, thereby improving access to specialized care for individuals with TBI. The multi-center module project, Associations of Early Life Adversity and Neighborhood Environment with TBI Outcomes, builds upon collaborative expertise in life course epidemiology, geospatial indicators of social determinants of health, and outcome modeling to collect new data on early life circumstances—a little explored area—to significantly advance knowledge in how early life and concurrent environmental factors relate to injury outcomes to translate this knowledge into targeted policy changes and individualized care delivery for individuals with TBI.