KEYS

Definition

Keys includes Center ID, Subject ID, Mod1 and Mod2 ID, Follow-Up Period, and GUID.

Form

[X] Form 1
[X] Form 2

Source

Data Collector

Details

GUID

Please contact the NDSC for assistance with gaining FITBIR access to be able to create GUIDs.

Mod1ID and Mod2ID

‘Mod1ID’ and ‘Mod2ID’ are unique identifiers within their corresponding datasets.

‘Mod1ID’ uniquely identifies the rows in the Form 1 dataset. Form 1 data is collected upon intake and includes subject history and demographic variables. It has one row per subject.

‘Mod2ID’ uniquely identifies the rows in the Form 2 dataset, which contains follow-up data. Follow-up data is collected at certain years post-injury: 1, 2, 5, 10, 15, and every 5 years thereafter. There are multiple rows per subject in this dataset, so it also contains Mod1ID, which can then be used as a key to merge the two datasets.

For example, if a subject has follow-up data at Year 1, Year 2, and Year 5 timepoints, they will have one row in Form 1 and three rows in Form 2. A second subject may only have follow-up data at Year 1 and Year 2, so they will have one row in Form 1 and two rows in Form 2. Here is an illustration:

Form 1: Mod1ID
1
2

Form 2: Mod1ID Mod2ID
1   1
1  2
1 3
2 4
2 5

Links

GUID Manual

Characteristics

As of 4/1/02, the TBIMS data entry system has the capacity to present data entry screens that match more than one version of the Form I. Obtain the data entry screens that match the Form I you wish to enter by selecting the version number of your Form I from the drop down menu.

As of 4/1/04, all versions of Form I from V7.5 on are available as data entry screens. If the version of the Form I that you wish to edit or enter into the database is not listed on the drop-down menu, refer to external link.

Variables

Form Type	Variable	ID	Question	History
Form 1	Center	418	Center ID:	1989-10-01 - Variable Added
Form 1	GUID_consentF	507	Did participant consent to FITBIR GUID?	2015-01-01 - Variable Added
Form 1	GUID_realF		Real GUID:	2015-01-01 - Variable Added
Form 1	Mod1Id		Id Number for Participant Record
Form 1	StaffInitials		Staff initials:
Form 1	SubjectId		Subject ID:	1989-10-01 - Variable Added
Form 2	Center	606	Center ID:	1989-10-01 - Variable Added
Form 2	FollowUpPeriod	687	Followup period:	1989-10-01 - Variable Added
Form 2	GUID_consentF	4022	GUID_consent
Form 2	GUID_realF		GUID_real
Form 2	Mod2Id		Id Number for Follow-Up Evaluation
Form 2	StaffInitialsF		Staff initials
Form 2	SubjectId		Subject ID:	1989-10-01 - Variable Added

Codes and Values

ID	Code	Description
418	2	The Virginia Commonwealth TBI Model System
418	3	The Institute for Rehabilitation and Research (TIRR Memorial Hermann)
418	4	Southeastern Michigan Traumatic Brain Injury System (SEMTBIS)
418	5	Northern California TBI Model System
418	6	The Ohio Regional TBI Model System
418	7	Moss TBI Model System
418	8	University of Alabama at Birmingham Traumatic Brain Injury Care System
418	9	Rocky Mountain Regional Brain Injury System
418	10	Georgia Model Brain Injury System (GAMBIS)
418	11	Spaulding/Partners Traumatic Brain Injury Model System at Harvard Medical School
418	12	Mayo Clinic Traumatic Brain Injury Model System
418	13	University of Missouri
418	14	TBI Model System of Mississippi
418	15	Northern New Jersey Traumatic Brain Injury System (NNJTBIS)
418	16	Carolinas Traumatic Brain Injury Rehabilitation and Research System
418	17	Oregon Health Sciences University
418	18	University of Washington Traumatic Brain Injury Model System
418	19	JFK-Johnson Rehabilitation Institute Traumatic Brain Injury Model System
418	20	University of Pittsburgh Medical Center Traumatic Brain Injury Model System (UPMC-TBI Model System)
418	21	North Texas Traumatic Brain Injury Model System
418	22	New York Traumatic Brain Injury Model System
418	23	Midwest Regional Traumatic Brain Injury Model System
418	28	Rusk Rehabilitation TBIMS at NYU
418	29	Indiana University / Rehabilitation Hospital of Indiana
418	30	South Florida TBI Model System
418	50	NDSC
507	1	Consented
507	2	Deceased prior
507	3	Did Not Consent
507	77	Refused
606	2	The Virginia Commonwealth TBI Model System
606	3	The Institute for Rehabilitation and Research (TIRR Memorial Hermann)
606	4	Southeastern Michigan Traumatic Brain Injury System (SEMTBIS)
606	5	Northern California TBI Model System
606	6	The Ohio Regional TBI Model System
606	7	Moss TBI Model System
606	8	University of Alabama at Birmingham Traumatic Brain Injury Care System
606	9	Rocky Mountain Regional Brain Injury System
606	10	Georgia Model Brain Injury System (GAMBIS)
606	11	Spaulding/Partners Traumatic Brain Injury Model System at Harvard Medical School
606	12	Mayo Clinic Traumatic Brain Injury Model System
606	13	University of Missouri
606	14	TBI Model System of Mississippi
606	15	Northern New Jersey Traumatic Brain Injury System (NNJTBIS)
606	16	Carolinas Traumatic Brain Injury Rehabilitation and Research System
606	17	Oregon Health Sciences University
606	18	University of Washington Traumatic Brain Injury Model System
606	19	JFK-Johnson Rehabilitation Institute Traumatic Brain Injury Model System
606	20	University of Pittsburgh Medical Center Traumatic Brain Injury Model System (UPMC-TBI Model System)
606	21	North Texas Traumatic Brain Injury Model System
606	22	New York Traumatic Brain Injury Model System
606	23	Midwest Regional Traumatic Brain Injury Model System
606	28	Rusk Rehabilitation TBIMS at NYU
606	29	Indiana University / Rehabilitation Hospital of Indiana
606	30	South Florida TBI Model System
606	50	NDSC
687	1	Year 1
687	2	Year 2
687	5	Year 5
687	10	Year 10
687	15	Year 15
687	20	Year 20
687	25	Year 25
687	30	Year 30
687	35	Year 35
4022	1	Consented
4022	2	Deceased Prior
4022	3	Did Not Consent
4022	77	Refused

History

Date	Description
1995-01-01	Changed CODE : added 2 digits to number to identify year of annual follow-up evaluation.
2004-01-01	Changed CODE : corrected number of digits--changed from 11 to 9.
2010-04-01	Removed centers 13 - Missouri, and 17 - Oregon, corresponding with archival of data from non-participating centers