DS006 - Follow-up Centers Collaborative Relationships

DS006 Follow-up Centers Collaborative Relationships
Review Committee: Research Start Date: 12/6/2010
Attachments: None Last Revised Date: 6/16/2023
Forms: None Last Reviewed Date: 6/17/2024

Introduction:

A practice within the TBIMS Centers Program is to provide funding to former Traumatic Brain Injury Model Systems (TBIMS) Centers to continue Form II data collection on the participants they had previously enrolled in the TBIMS National Database. These centers are referred to as TBIMS Follow-Up Centers. With the creation of this new affiliation within the TBIMS Centers Program, the Project Directors expressed a need to define the collaborative relationship between the TBIMS and the TBIMS Follow-up Centers.

Purpose:

To detail a policy and procedure for the collaborative relationship between the TBIMS and the TBIMS Follow-up Centers.

Scope:

All current TBIMS Centers, TBIMS Follow-up Centers, and the National Data and Statistical Center (NDSC).

Responsibilities:

All those specified in the scope will abide by this policy and procedure.

Definitions:

  • TBIMS Centers and the NDSC are those that are currently designated and funded by NIDILRR as such.

  • TBIMS Follow-up Centers are former TBIMS Centers that are no longer funded as such, but are funded via contract through the NDSC to continue Form II data collection on participants they have already enrolled in the TBIMS National Database (NDB).

Procedure:

  1. The NDSC will contract with TBIMS Follow-up Centers to continue to collect Form II data for the TBIMS National Database.

  2. Designated staff at the TBIMS Follow-up Centers should:

    1. subscribe to the Data and the Notification listservs;

    2. follow the TBIMS Internal Notification Policy (see Standard Operating Procedures Manual SOP#602b) to initiate or participate in projects analyzing TBIMS National Database;

    3. attend the TBIMS Data Collectors Meetings and Quarterly Data Collectors Teleconferences;

    4. have full access to the members only sections of the TBIMS NDSC website; and

    5. participate if desired in TBIMS Special Interest Groups (SIGs) listservs, teleconferences and in-person meetings via conference line. The positions of chair and co-chair for TBIMS SIGs will be reserved for staff from currently funded TBIMS Centers.

  3. TBIMS Follow-up Centers are not allowed to participate in TBIMS Module projects.

If a TBIMS Follow-up Center wishes to expand their level of collaboration with the TBIMS beyond Form II data collection, they will follow the procedure outlined in SOP 604a for non-TBIMS entities.

Training requirements:

None

Compliance:

All current TBIMS Centers, TBIMS Follow-up Centers, and the NDSC are responsible for adhering to this policy and its procedures.

References:

None

History:

Date Action
12/6/2010 Approved by SOP Committee
6/12/2015 Updated NIDRR to NIDILRR
12/7/2019 Reviewed
6/16/2023 Prohibited TBIMS Follow-up Centers from participating in Modules

Review schedule:

At least every 5 years.