DS004 - Non-TBIMS Collaborative Relationships

DS004 Non-TBIMS Collaborative Relationships
Review Committee: Research Start Date: 5/27/2009
Attachments: None Last Revised Date: 6/12/2015
Forms: None Last Reviewed Date: 6/17/2024

Introduction:

With recent discussion of potential collaborative projects between the TBI Model Systems (TBIMSs) and non-TBIMS entities, the TBIMS Project Directors expressed a need to define what would be involved in these different types of collaborative relationships.

Purpose:

To establish a policy and procedure for collaborative relationships between the TBIMS and non-TBIMS entities.

Scope:

All current TBIMS Centers, TBIMS Follow-up Centers, the National Data and Statistical Center (NDSC), and other non-TBIMS entities.

Responsibilities:

All those specified in the scope will abide by this policy and procedure.

Definitions:

  • TBIMS Centers and the NDSC are those that are currently designated and funded by NIDILRR as such.

  • TBIMS Follow-up Centers are former TBIMS Centers that are no longer funded as such, but are funded via contract through the NDSC to continue Form II data collection on participants they have already enrolled in the TBIMS National Database (NDB).

  • Non-TBIMS entities are those that do not fit the definitions above. Examples include previously funded TBIMS Centers that are neither current TBIMS Centers nor TBIMS Follow-up Centers. Additional examples include, but are not limited to, public and private agencies, organizations and institutions that have never had an affiliation with the TBIMS Centers Program.

Procedure:

  1. Non-TBIMS entities interested in collaboration with NIDILRR’s TBIMSs related to data collection should contact the NIDILRR TBIMS Program Manager. If the TBIMS Centers are interested in any type of collaboration with a non-TBIMS entity, they should also contact the NIDILRR TBIMS Program Manager.

  2. NIDILRR will determine the purpose of the collaborative relationship and determine if there is an interest in this collaborative relationship. NIDILRR may choose to consult the TBIMS Executive Committee or its Chair in making this determination.

  3. If the collaborative relationship is deemed of interest to NIDILRR, the NIDILRR TBIMS Program Manager will notify the TBIMS Project Directors via the Directors’ listserv and solicit/determine points of contacts (POCs) for the specific collaboration with the TBIMSs.

  4. A separate SOP will be developed to detail the nature and level of the collaboration, and may include discussion of the following:

    1. access to TBIMS NDB and module data;

    2. access to data collected by the non-TBIMS entity;

    3. access to members-only sections of the TBIMS website; and

    4. participation in meetings and listservs for TBIMS committees, modules, and SIGs;

  5. The NIDILRR TBIMS Program Manager and/or TBIMS POCs will provide updates on collaborations at semi-annual Project Directors meetings.

Training requirements:

None

Compliance:

All currently funded TBIMS Centers, TBIMS Follow-up Centers, the NDSC, previously funded TBIMS Centers and other non-TBIMS entities are responsible for adhering to this policy and its procedures.

References:

None

History:

Date Action
5/27/2009 New Policy approved by Project Directors
12/03/2010 Revised
12/06/2010 Approved by SOP Committee
07/07/2014 Reviewed and approved with minor editorial changes
6/12/2015 Updated NIDRR to NIDILRR
12/7/2019 Reviewed

Review schedule:

At least every 5 years.