National Data and Statistical Center

Northern New Jersey Traumatic Brain Injury System (NNJTBIS)

The Northern New Jersey Traumatic Brain Injury System (NNJTBIS) conducts both a site-specific research study and a collaborative research module. These projects, both related to ongoing NIH-funded studies, contribute to evidence-based rehabilitation interventions and quality of life measurement to improve the lives of individuals with TBI, as follows:

(1) An innovative, double-blinded, randomized controlled trial of a cognitive rehabilitation intervention utilizing a proven methodology shown to be effective with the multiple sclerosis population; and

(2) A collaborative module that adapts, develops, and validates an innovative quality-of-life outcome measurement system for use in TBI intervention research.

Each of these projects has been subjected to initial pilot testing to assure the applicability and feasibility of the methodology. The evaluation of this project is guided by a multifaceted approach, which uses a highly quantifiable, objective means of evaluating progress. This is supplemented by a Community Advisory Board, NNJTBIS Steering Committee, and an external Scientific Advisory Board, which provides feedback on a quarterly, annual, and bi-annual basis, respectively. In addition, project management staff meets internally on a regular basis to review data management and data quality issues and assure effective communication with Kessler Institute for Rehabilitation (KIR) and staff from the trauma centers. Finally, the NNJTBIS coordinates with the NIDRR-funded Model Systems Knowledge Translation Center at the University of Washington to provide scientific results and information for dissemination to clinical and consumer audiences. The NNJTBIS is a cooperative effort of the Kessler Research Foundation Center, KIR, and trauma centers from the University of Medicine and Dentistry of New Jersey - The New Jersey Medical School (UMDNJ-NJMS), Hackensack University Hospital, Morristown Memorial Hospital and St. Joseph's Hospital.